Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Advocate for Epilepsy

Closing Forums - Big Mistake

06/2020 | 2 Comments

I think closing the forum is a big mistake. I don’t use social media for a number of reasons and I haven’t had good experiences with the local...
ADHD Medication & Epilepsy

05/2020 | 3 Comments

Please update this article to reflect...
Mandatory Face Masks in public spaces

05/2020 | 3 Comments

Does anyone have concerns related to mandatory facemasks some cities and towns are requiring in public spaces and stores? My small town (25K people)...
Speaking To Congress Again

05/2020 | 0 Comments

I took action by speaking to congress again, this time asking them to co-sponsor the safe step act for our community.
Speaking To Congress

05/2020 | 3 Comments

I took action and by speaking to congress and the congressman of our state of Maryland to include the disability community and the epilepsy community...
Writing a book and would like insight

05/2020 | 3 Comments

Hey everyone. I have written a fiction novel in which my main character lives with Epilepsy. I have researched epilepsy and spoken to a family friend...
My Story

05/2020 | 1 Comments

Hello, My name is Jennifer I was diagnosed with epilepsy at a young age due to trauma to the head. I am now 44 years old. A ton has happened in my...
Telemedicine and Internet service

04/2020 | 1 Comments

The need for telemedicine is great now for all. It is seen as a potentially useful tool for persons with epilepsy because of our driving /...
Petition for Hollywood

12/2019 | 0 Comments

Petition for Hollywood to Consider Making Epileptic Safe Movies Instead of Just Providing Nice Caution Signs Okay, so if 1 in 4,000 people have photo...
Patient Doctor Communication PNES

10/2019 | 4 Comments

The Breakdown in Patient/Doctor communication in Psychogenic Non-Epileptic Seizures (PNES)/Convulsive Syndrome of Unknown Origin (CSUO) as seen by a...
My son lost his young life to epilepsy

09/2019 | 3 Comments

11 weeks ago, my world was changed forever, and my faith shaken to its core.i received a frantic call from my husband Thursday, July 18,2019 to come...

08/2018 | 2 Comments

Calling out all doctors. Why myself and countless families are suffering due to your lack of caring I suppose I don’t know. What I’m getting at is...

07/2018 | 0 Comments

Hi everyone. This is one of the poems from my collection of poems about my daughter who died at the age of 25 from SUDEP. She was 7 months pregnant so...
Through Plate Glass

07/2018 | 1 Comments

I’ve finally published my collection of poems that have taken me 13 years to write about the loss of my daughter Sam and her baby. It’s my journey...
volunteer coordinators

04/2018 | 0 Comments

I have stress seizures & all volunteer coordinators think & say I can't be a volunteer because I'm unsafe to volunteer because I have epilepsy read my...

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