Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Creating Awareness
Tue, 10/21/2014 - 11:40Topic: Advocate for Epilepsy
Hi Everyone!
My name is Lana and I was diagnosed with epilepsy about ten years ago at 21. It is sort of controlled due to medication (I take Trileptal, Topamax, Clonazepam, B6 and fish oil, and Ativan at the onset of an aura), but I still have partial onset and tonic-clonic seizures, absences, and sleep seizures as well.
I live in Stamford, CT and the closest affiliates to me are in New York and Middlesex, CT. I don't drive and also work from home due to my condition and I would love to be active and hands-on in the Epilepsy Foundation. I would be interested in hosting a fundraiser, events, Meetups and eventually starting my own chapter in Fairfield County. Does anyone live around me who would be open to advising me on next steps, or even help me go about this? I would be willing to travel a bit (I live near a bus and a train).
Thanks so much- any advice is appreciated!
Lana