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Denied a vacation because of my seizures

Mon, 04/11/2011 - 16:28
Hi, i'm Andrea and i'm new to this site. I have petit mal seizures. i'm 33 years old. Anyways, my friend had invited me on a cruise with her, the first time I was ever invited on vacation with her. I said I could go. Anyways, she talked to this person in charge of booking the cruise about my seizures, whose name was Lymn. And Lymn told her that they don't allow people on the cruise who have seizures. She said that people with seizures need to have someone watching them 24 hours a day and the cruise can't provide that, so therefore its there policy not to allow people with seizures on their cruise. Could she get in trouble for that if I file a complaint against her? Is what she did illegal? Are cruises allowed to do this? I found out that a lot of cruises are actually treating people with epilepsy this way. People with Severe Mental Illness can still go on a cruise, but people with epilepsy can't. That doesn't seem fair. cheerbear11

Comments

Re: Denied a vacation because of my seizures

Submitted by 3Hours2Live on Wed, 2011-04-13 - 00:20
Hi CheerBear11, I've tried to keep track of reports of denied access and denied services that were denied because epilepsy was involved. Very few of the reports have later reports, or the outcomes of the resolutions following the format of the anti-discrimintion laws involving epilepsy. One report that is still on the internet, with 43 comments (which match many remarks I started receiving in grade-school over my speech impairments), involves Bingo: http://www.thisisnottingham.co.uk/news/woman-suffered-epileptic-fit-bingo-game-banned-premises/article-2607705-detail/article.html "Was an Epileptic Passenger 'Sent Off' a Thomson Cruise?" is at: http://www.cruisecritic.com/news/news.cfm?ID=4371 and, http://www.cruises.co.uk/109-cruise_news/16422-kicked_off_passengers_hit_out_thomson.html Most of my experiences have been with prospective employers. Soon as my epilepsy becomes known, I'm soon kicked out the door. My last written discrimination complaint was against my own medical clinic when they deemed that epilepsy made it too dangerous for me to make the less than a mile walk to-and-from the clinic from my home, and refused me services because I refused to utilize ambulance services to an ER for identical services otherwise available at the much closer clinic. They reported to the local Adult Protection Services that I was in danger by making the walk, but they changed their minds when they received notice of my formal ADA complaint with the administrative federal agency. I believe they prejudicially didn't want patients with epilepsy (esp. with only Medicaid), and that they tried to exploit safety concerns over absurd biased misconceptions of epilepsy, to otherwise "legally" shield themselves from the ADA. Tadzio

Re: Denied a vacation because of my seizures

Submitted by wd123 on Tue, 2011-06-07 - 20:56

I am sorry this has happened. I have been denied jobs, been treated poorly at work, been denied access to services eg health services "because we don't cater for people with this medical condition" after "meetings" were held. Before my condition was diagnosed I was catered with same health services.

I would file complaint, but don't go on that cruise. I am wondering how you could prove this though that you actually rang up? Did you record the call or date or time?

It could get them to change their policy for next either epilepsy or similar condition.

I am sorry this has happened. I have been denied jobs, been treated poorly at work, been denied access to services eg health services "because we don't cater for people with this medical condition" after "meetings" were held. Before my condition was diagnosed I was catered with same health services.

I would file complaint, but don't go on that cruise. I am wondering how you could prove this though that you actually rang up? Did you record the call or date or time?

It could get them to change their policy for next either epilepsy or similar condition.

Re: Denied a vacation because of my seizures

Submitted by cheerbear11 on Tue, 2011-06-07 - 21:27
I did file a complaint, but nothing got done. As soon as I say Epilepsy, I get ignored. Fortunately, I have a good job. I work for a listening service where people with Disabilities can call in if they are lonely or just need to talk. My supervisor is great about my seizures. In a staff meeting she has even had me tell my co workers what to do when I have a seizure. She runs a drop in center for people with Mental Illness that I am a member of and I am not the only one with seizures. cheerbear11

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