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Whispering, not present, disengaged

Sat, 11/23/2013 - 17:24
My 10 yr old son was recently diagnosed with a seizure disorder. It took a year and a new neurologist to figure out what was going on. He was experiencing absence seizures. It started out as teachers thinking that he was "checking out" when school got boring. As time went on my son was "checked out" for about 95% of the day. Our former neurologist said he had serious mental health issues and dismissed us. At that time he was whispering/talking to himslef in partial words and phrases that weren't connected to what was going on and didn't have any flow to them. ie - wasn't just scripting from Lion King or other Disney movie innhis head. It was like neurological mish mash. He was not accessible at school or at home. It was like he disappeared. After findng the right AED and the right dosage he started to "come back" and he was able to engage with others again. I have done a lot of reading and have not come up with anything like this as a symptom of seizures. Has anyone else expeienced this level of disengagment? This went on for about 8 months before things started to get better. We have increased and added another med as things seem to be ok for awhile and then the whispering and disengagement creeps back in. Any informatin would be helpful. Thanks:)

Comments

Re: Whispering, not present, disengaged

Submitted by mereloaded on Wed, 2013-11-27 - 07:52
Have you looked into Hellers syndrome?

Re: Whispering, not present, disengaged

Submitted by pgd on Mon, 2013-11-25 - 11:49
Regarding ideas like being here (consciousness/alertness) vs not here (partial/altered consciousness/unalertness); paying attention vs inattention - try finding a copy of the two following educational books: Nerves in Collision book (about the nonconvulsive epilepsies) by Walter C. Alvarez, M.D. and the How To Cure Hyperactivity book (1981) about Inattentive ADHD, auditory processing, and dyspraxia by C. Thomas Wild, introduction by Anita Uhl Brothers, M.D. Both books address aspects of the neurological issues you pose. Best wishes.

Re: Whispering, not present, disengaged

Submitted by cmknaak on Mon, 2013-11-25 - 16:46

Thank you for the suggestions for resources. I will find the books. I appreciate your help.

Thank you for the suggestions for resources. I will find the books. I appreciate your help.

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