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Sensitivity to Vns

Fri, 04/15/2005 - 19:02
Well I am both disappointed yet very relieved. After way too many seizures in the last 6 weeks, for someone who is on three drugs.Feeling very tired, loggey and drained of my usual energy for this time of year and really wanting my life back it was back to the Dr.s Fortunately,my Epileptologist is very patient in my rather tough situation. With a bilateral epilepsy. I felt that my body was having to deal with too many things all at once, VNS adjustments to the different settings every 2-3 weeks, new meds being introduced and all the seizures. So given that my VNS setting was low to start, I had choked badly during a seizure due to using the magnet to try to stop the seizure . We agreed to turn it off. Wow, I feel better already, my body feels much more relaxed and calmer. Leaving me relieved it is off but disappointed it wont work for me, my body is just way to sensitive to it. Thus will most likely have the battery pack removed at some point.My advice to possible VNS people Please make sure you research it and look at all your possibilties. It is not a miracle for all as can be what Cyberonics makes us think. given how many complications I personally have had I and my family wish we had not gone this route . Yet if you feel it will work I wish you the very best with it

Comments

Re: Re: RE: RE: RE: Sensitivity to Vns

Submitted by trulyblessed on Sun, 2006-03-05 - 09:31
I had my own NIGHTMARE with CYBERONICS and the VNS! My case being that the lead wire came out of it's protective casing and was causing me a great deal of pain everytime the sucker would go off. Also,the doctor who installed my VNS who keep in mind has to be trained and approved by CYBERONICS botched my implant surgery. I had to have a second surgery revision to fix the lead wire that took 8hrs. I am now meeting with plastic surgeons and another ENT specialist to see if I can keep the device in and turned on. Check the FDA website and look up lead wires coming out of their casing for the VNS Implant. ~~Amanda

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