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Is it for real?

Mon, 04/11/2005 - 08:41
I hope this isn't too touchy a subject, but it's about someone I care about and it's a serious question weighing on my mind, along with others.I have a friend who has seizures, of a sort. Problem is, she is known for dramatic cries for attention, and the symptoms are inconsistent with anything I've been able to look up about epilepsy, not to mention her neurologist doesn't find anything out of the ordinary, nor any reason..On one hand the questionable nature of the seizures and the obvious milking of sympathy about her "disorder" (timing, announcing, etc.) over several years make me believe she's a convincing faker.On the other hand, I'm no expert.. There's always a "what if" nagging in the back of everyone's minds, and no one wants to risk being publicly skeptical, particularly if she really -does- have something that happens to be terribly unique.Are there particular characteristics of an epileptic seizure to look for, and some that are misconceptions a faker may try? Also, what are some ways to keep someone from hurting themselves or anything, during a seizure? (Someone suggested putting a belt between her teeth while she was convulsing, which she later corrected in a catty tone, "You should never put something in a person's mouth while they're having a seizure." so I just want to be in the clear on what is or isn't supposed to be done.)If it is for real, we are her friends and will support her, and do care for her dearly. But so many things are making us wary of someone taking advantage of that. We love her, but have a hard time trusting her.

Comments

RE: Is it for real?

Submitted by Gretchen on Wed, 2005-03-23 - 15:39
Edited - due to excessive length.Gretchen

RE: RE: Is it for real?

Submitted by Nicue on Wed, 2005-03-23 - 18:03
Wow, I wasn't expecting a novel, but thanks for the reply.My concerns aren't about myself, or her manipulation of me. I'm not easily pushed around, even if I tend to be trusting and naive at times. I'm just concerned about her, what's going on with this friend, and the fact that if she continues to pretend, it will all come out worse for her in the end. Imagine she cries wolf enough times that no one believes her, and one day she's not pretending, and she's ignored? So far a great number of our old circle of friends have practically disowned her, not specifically for the -supposed- epilepsy, but for similar behavior in other areas.What you described toward the end, about people going so far as to have convinced themselves they -do- have seizures so it almost in involuntary, that's something I've considered to be the case, because I give her enough credit to think she's mature enough not to outright fake it. Her mother has mentioned examinations coming back normal, the medication she was put on "for my seizures," she told me, are actually just antidepressants, and there are convenient things about the timing and such.She only ever has them when there are a number of us (her friends) around, and in a public place. They only seem to happen if she's feeling left out, or if people are excited over something she's not involved in, she always finds a convenient place - a couch, saying she feels faint and dragging herself melodramatically into the back of a restaurant we're in - and as soon as someone suggests something either serious or 'undignified' such as calling 911 or putting something in her mouth, things calm down, and she will leave before any ambulance gets there.She's been a good person, and I'm sure if she grows out of the need to find attention in any way possible, she will be an even better person, but if she's exploiting the sympathy she thinks she should get from people thinking she genuinely has epilepsy, it's just... I think it's beneath her. The problem is, the risk of being wrong, that all this time I've rolled my eyes at genuine seizures, even if they don't appear to be real.A few things her last 'episode' brought up, as observed by people who were scared for her and tried to help: She was very aware of everyone around her, remembering what they said during, and recalling it afterwards. Her heart rate was normal, when someone took her pulse. The 911 operator, when someone described what she was doing to them, said it didn't sound right. Afterwards, she was perfectly fine, even explaining to people who hadn't seen her 'attack' what just happened, and left before an ambulance could arrive.She doesn't manipulate me, but she does make a scene with small-medium-sized groups of people, and by now I and everyone who's used to her behavior just ignores her - because she'll never let herself get hurt, or hit her head on anything if she can help it, and is fine afterwards.I'm skeptical, so is her family, and her neurologist gets paid to tell them he doesn't know why she's having seizures. I think i'm the only one who's spoken to her about seeing a psychologist rather than a neurologist..Still, the nagging doubt remains about being too insensitive to someone who genuinely needs help, even if she's crying for the wrong kind of help.

RE: RE: Is it for real?

Submitted by Nicue on Wed, 2005-03-23 - 18:10
Sorry to reply -again-, but I wanted to add this.I still want to know what, exactly, should be done in the case she's having a real seizure. She insists that nothing should be put in her mouth, others quote grinding teeth, biting or swallowing the tongue, and I've read both ways looking it up online. So far the only thing I've gotten down is to keep an eye on her and make sure she doesn't hit her head on anything hard.I guess the sore point for me is when she laid at my froont door until I opened it, then fell over and started convulsing one night. She whispered, during a lull in convulsions, for me to get her purse, take the wallet out, find the business card for her neurologist (I made her repeat everything about three times each, I could barely hear her whispering) and later on, plainly told someone else over the phone about how inept I was at finding her doctor's home phone number from the answering message at his office.I don't think, during a seizure, she should have been able to instruct me so repeatedly, and remember the details of how I handled sitting by her side outside my front door at night enough to criticize.

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