Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Diagnostic Dilemmas and Testing

My Mysterious Midlife Epilepsy

09/2016 | 0 Comments

My first seizure came at 43. I thought it was due to a poor lifestyle, so I began eating better, stopped drinking and smoking, then just I turned 57 I...
Marijuana or anxiety related epilepsy?

09/2016 | 1 Comments

I have seen a Neuro and had an EEG done, it came back normal. no doctor atm due to insurance, so I am here. not epileptic i guess. I am 19 years...
Anyone with a listening ear?

09/2016 | 2 Comments

hello everyone, Any help would be appreciated! :) I'm a 25 year old female and as far back as I can remember I've had these "episodes" I call them. It...
Is it always the same feeling?

08/2016 | 2 Comments

My neurologist wondered if I might be having seizures after describing to her deja vu experiences. I'm 29 now and had several pretty major seizures as...
Help understanding EEG report?

08/2016 | 1 Comments

I just got my 5 year old son's 94 hour EEG results, and I'm super confused. Is anyone able to help be understand the terms? He was diagnosed with...
Just had my VEEG - horrible symptoms

07/2016 | 0 Comments

Hello, I'm new to this - a couple of months back I developed an intermittent myoclonus which became continuous (constant, rhythmic jerking in my...
Vagus Nerve stimulator with MRI

07/2016 | 0 Comments

Hello, I have DRE Epilepsy and am on medications. I recently was sent to another specialist, and she wants me to get a 3T MRI. I was told when I got...
Mystery jolts a type of seizure?

07/2016 | 0 Comments

Hi, I'm a 36y/o otherwise healthy male living in the tropics of Puerto Rico. I'm posting here because when these electric shocks happen they sometimes...
Help with Interpretation of Test Results

07/2016 | 0 Comments

Hi - when I was a toddler in early 1970s was diagnosed with idiopathic epileptic seizures. I was put on Phenobarbitol and then Dilantin for a short...
Please help with this EEG report

07/2016 | 1 Comments

Had EEG test for my wife. The doctor gave report as below "Abnormal EEG with interictal epileptiform discharge which occurred shortly after...
Please help me understand!

06/2016 | 0 Comments

The other day my sister asked me to play Yahtzee with her (a game we have previously played on numerous occasions). I apparently said I could not...
Looking for answers and encouragement.

06/2016 | 0 Comments

The day my drivers license officially is being put on a hold. Thought I would write a post just because I'm frustrated, confused, and a little pissed...
Temporal Lobe Seizure Experiences

06/2016 | 0 Comments

I have been dealing with what I've always thought was hypoglycemia; sweaty, confused, extremely anxious, shaky, etc. The reason I have always...
Clearing my ears during EEG

06/2016 | 0 Comments

I had spikes-wave complexes on my awake, routine EEG. I found out that these are bad. But, during the test I had a sinus infection that was bothering...
Could this be epilepsy

06/2016 | 0 Comments

Hi my Lil boy has microcephaly and a frontal lobe glioma which is stable but especially in the night has been having some suspicious movements do was...
Advice about 3yr old son

06/2016 | 1 Comments

My son has been having staring spells and has also had shaking and gone unconscious several times in the last year and a half. Every doctor,nurse,ems...

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