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Worried Mom...please help.
Wed, 07/11/2018 - 08:12Topic: Epilepsy.com Help
My 7 year old son had his first seizure while he was with my grandmother almost 3 months ago. She rushed him to the er and he was vomiting many times. 2 weeks after his first seizure I took him to a neurologist with high hopes since he hadn't had another seizure. The doctor recommended my son be sleep deprived for the eeg test. My son went to sleep during the test and upon waking him he had another seizure which would be the second. The doctor diagnosed him with epilepsy. He started Trileptal for 30 days but broke out in rashes. Now he is on Keppra and he's been fine. There hasn't been another seizure in over 2 months. I've been having trouble coping. Recently my grandmother slipped and told me my son had fell out of the car but she immediately cleared it up saying he almost fell out of the car. It was very shocking for me, now I believe my son had a head injury that caused all this and my grandmother will never admit it because she scared I wouldn't let her keep my son anymore. I don't know what to do. Or if it being a head injury would it change the diagnosis of epilepsy. My son had a normal mri but I'm still so concerned and worried. What would be your next step? Has anyone been diagnosed with epilepsy because of a head injury?
Comments
Since people are stressed,
Submitted by Amy Jo on Thu, 2018-07-12 - 19:53
Since people are stressed, that means they don’t always recount events clearly (parents dealing with epilepsy have this problem at times without any other relative involved). Blame does not serve anyone in epilepsy. If your grandparent may not be suitable to watch a great grandchild, evaluate that separately.Don’t assume epilepsy is caused by one thing or another unless your neurologist is certain (very unlikely they are ever certain unless you find genetic issues and even then understanding is not much). Often there’s a quiet period of years between a head injury and any epilepsy (and head injuries do not mean one will get epilepsy). Immediate seizures after injury would likely show up on imaging. It was initially thought our child’s epilepsy was associated with damage from another condition (and associated brain surgeries) but years later we have evidence that the epilepsy is genetic.
Stress of the diagnosis is
Submitted by just_joe on Thu, 2018-07-12 - 20:19
Stress of the diagnosis is enough for yall to deal with. A person can have a head injury and it never shows up on an MRI. Mine did but it was very severe.I needed 32-36 stiches in my mouth and 4 teeth were knocked out. My seizures started 7-8 years later.In order to help him and keep things together you need to deal with the present and not look at the past.The EEG showed some things and the diagnosis was probably made from that. If the MRI was normal it means they see nothing different on his brain. Meaning if he did hit his head it did nothing to his brain. It seems like the Keppra is controlling his seizures at the present time. Just keep an eye on him and understand that medications are trial and error in many cases. Understand too that as he grows his doses will need to be adjusted from time to time. As the body grows and he gets used to a certain amount that therapeutic level might be lower then needed. My meds have changed and the doses have changed about 20 different times in my life.
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