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8 year old with rolandic epilepsy

Sun, 12/05/2004 - 20:26

Hi,

My son was diagnosed in spring 2003 after several mild seizures. He has been on carbitrol since then -150 mg 2xday. Yesterday his neurologist increased the dose to 200mg 2xday. He has been having difficulties in school with distractibility and handwriting. The distraction issue started about the time his meds started, and increased when his dosage increased. We are in the process of working out with Drs. meds for add/adhd. Has anyone had similar distraction problems while on carbitrol/tegretol? And, how about handwriting?

Thanks, robin510

Comments

RE: RE: RE: RE: 8 year old with rolandic epilepsy

Submitted by drsjg on Thu, 2005-02-17 - 00:03

BRE has a very distinct EEG pattern.  If it is found than a diagnosis can be made even if only one seizure.

BRE has a very distinct EEG pattern.  If it is found than a diagnosis can be made even if only one seizure.

RE: 8 year old with rolandic epilepsy

Submitted by e_nuffofthis on Thu, 2004-11-11 - 08:44

Was his seizures controlled before the increase?  Was the med increased because he was still having seizures or because his level was lower than what the doc liked and he just decided to increase it because of that?

The problems in school are related to the medication; however it could be abnormal activity in the brain also.  Been going through this for years, and seizure control, unfortunately, has to come before the problems associated with the meds.  We have no choice.  Being it's handwriting, find out what area in the brain is responsible for that (maybe right prosterior region?) and try to associate it with where the docs think the seizures are beginning.  Maybe there is a correlation.

I can't tell you whether or not your child may have ADHD on top of the seizures, or if it is purely the meds/seizure activity.  It's something you need to use your instincts for, talk to your doctor and decide if you want to medicate for both.  Does your child have an IEP plan at school?  If not, you should start finding out about that so that he gets the extra help he needs. 

Was his seizures controlled before the increase?  Was the med increased because he was still having seizures or because his level was lower than what the doc liked and he just decided to increase it because of that?

The problems in school are related to the medication; however it could be abnormal activity in the brain also.  Been going through this for years, and seizure control, unfortunately, has to come before the problems associated with the meds.  We have no choice.  Being it's handwriting, find out what area in the brain is responsible for that (maybe right prosterior region?) and try to associate it with where the docs think the seizures are beginning.  Maybe there is a correlation.

I can't tell you whether or not your child may have ADHD on top of the seizures, or if it is purely the meds/seizure activity.  It's something you need to use your instincts for, talk to your doctor and decide if you want to medicate for both.  Does your child have an IEP plan at school?  If not, you should start finding out about that so that he gets the extra help he needs. 

RE: 8 year old with rolandic epilepsy

Submitted by linalu on Sun, 2004-11-21 - 08:41
Hi Robin...I just saw your email and it sounds somewhat like our situation.  My son is 6 and started having seizures when he was three.  He is now on carbatrol also....a very large dose...800mg 2xday.  We had to keep raising the dosage to achieve seizure control.  His last seizure was in June and that is as long as he has gone without a seizure since this all started.  He entered 1st grade this year and has been having all kinds of learning and handwriting problems.  He has also been diagnosed with ADHD and started on meds for that, however we continue to try to discern what is what....the meds, abnormal brain activity related to epilepsy, does he really have ADHD????  Of course there is no easy or clear answer to these questions.  Our family life has been greatly affected by his behavior problems at home, however, strangely enough(although it is a good thing!) he seems to behave just fine at school...some issues with social skills, but other than that his teachers just adore him.  Please feel free to email me back with any questions.  One difference we have is that he has been on this medication for so long, and was on it his first year of school, that we don't have a clear "before" picture of his ability in school and therefore didn't get to witness a change due to medication.  Since your son is a bit older, it sounds like you saw some definite changes after the medication began.  My son is also a bit clumsy, and  a neuropsychologist who did testing with him this summer noted some fine motor issues....his teacher has also noticed gross motor, and I wonder how much of this is due to the medication.  We have also been working with an occupational therapist to address these, mainly focusing on handwriting issues.  Good luck with everything and i look forward to hearing from you!         Carrie

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