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epilepsy has ruined my life.

Wed, 11/20/2013 - 17:14
epilepsy has ruined my life. and it pisses me off how people think nothing of the diagnosis. it doesn't get the attention it needs for sure. when i was a kid, i didn't plan to NOT get a drivers license. i didn't plan on spending money on medicine for the rest of my life. i didn't plan that in the future it would be life-threatning to cross the road, cuz what if i have a seizure there? i hate this shit, and pardon my french, but this shit is too much, and it needs to get way more attention.

Comments

I'm 62 it's ruined the

Submitted by Tink_5c6708c45071e on Fri, 2019-02-15 - 13:45
I'm 62 it's ruined the relationship I had side effects are taking my hair away. My friends all think I'm mad. I'm alone and isolated I hv other injuries which made me less mobile hence weight gain I can do without. I'm bitter and angry. These are the last few years of my life and I feel I'm being torchured!!!!! 

I feel your pain. Never in my

Submitted by Grandma Kitties_5cc384f912283 on Fri, 2019-04-26 - 18:23
I feel your pain. Never in my wildest dreams did I think that I would have no life. Eleven years ago I was in a roll over car accident. The doctors failed to find out the reason and put me in a psych ward!!! I have broken bones, furniture and appliances. I never know where I will be or when it will happen. My husband is getting tired of worrying about me. I feel for him. I had a career, I had friends, I drove to vacation destinations, I enjoyed life. Now I have spent the last 11 years looking out the window watching life go by. I have a nice truck that I can’t drive. It took 3 years to finally be diagnosed with epilepsy, BTI, left and right frontal lobe injury. For three years people around me called me crazy. It was a huge relief to finally have a diagnosis. I have lost days, weeks, months and even years due to seizures. I am afraid to go out by myself because I am afraid of having a seizure and being hauled off in an ambulance. One visit, while visiting friends, they called 911. They tried to put me in a room, insert a catheter and admit me. The next day the nurse asked me why was I there. They were under the assumption that I had OD’d. When I told the nurse that I have epilepsy, the color drained from her face. I began ripping off all the crap they stuck on me, got dressed and ran to the front door. Now the fear is so terrifying that I refuse to go back. Luckily my husband of 34 years has been with me thru all of this. But that still doesn't make life suck any less. 

The exact same life story as

Submitted by Sunnyyy on Mon, 2020-04-27 - 18:38
The exact same life story as of mine. I don't have to change a thing from yours except that I graduated and working in a decent job that pays

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