Community Forum Archive

Would anyone like to share something about their epilepsy?

Wed, 10/30/2013 - 01:13
How it all started...

Comments

Re: Would anyone like to share something about their epilepsy?

Submitted by just_joe on Wed, 2013-10-30 - 11:33

The first seizure I was aware of was a grand mal seizure. It started with me being carried into the nurses office in jr high. I found out thru friends and the coaches that while on the basketball court before class one day That I had climed onto 2 benches stacked on top of each other. I pulled the jacked over my head. I pulled my arms into my jacket stood on top of the benches and fell face first onto the asphalt. I went into a convulsion. I came to or woke up while being carried by 4 varsite foot ball players 2 coaches one at my feet one near my head into the nurses office. I said Hi to them and was out again. I woke up that afternoon about 1:30 my motjer had been called and a doctors appointment had been made. We went to the doctors office and I was tested and EEG was done. During the EEG there were no abnormalities. Answering the doctors questions did give him insite. I was put on phenobarb and dilantin. Now understand that that was back in the early 60's so there was no web or other ways for average people to gather information regarding seizures. The doctor who became my PCP and I saw him monthly. In his questions there was have you ever felt different than you normally did. Any wierd feelings anywhere regarding anything.

I had had some wierd feelings in my head from time to time. I had been written up many times for day dreaming and yet my test and quize scores were amont the highest in the class. I had some funny feelings in my right hand. There were times my right hand would start moving without me wanting it to move.

The day dreaming was basically absence seizures. The wierd thing happening with my right hand were what today would be complex partial focal seizures. Other feeling in my head were auras.

It was over a year later and many diffferent seizures that I was put in the hospital to determine what was causing the seizures especially since all the EEG's had shown no abnormalities. I was prepared to have a wonderful spring break but I was not aware until spring break was going to be in the hospital. I was 13 and kids don't think about testing and visits to doctors offices. The tests back then were not like the tests today. There were no MRI's or CT scans. During the hospital stay they ran tests more EEG's some others which can not name. on the 3rd or 4th day they ran a angeogram which has been replaced with MRI's. I do know that during that they also did a spinal tap. What they did do was pump air into my head and took x-rays. I know I would not recomend letting them do that to my worst enemy. after it I woke up laying on my back. You see they cn pump air into your head but the air has to escape on it's own. thru the ears, nose, eye sockets and mouth and that takes time.It is recommended that a person lay flat on their backs for at least 1 day but the bed is raised a little over the next few days. I came too in that bed when the nusre was coming in and the door opening was louder than I wanted to hear it. Her foot steps were like gernades going off. A nurse walks quietly but a nun alks even quieter and back then the nurses were nus in a catholic hospital. the air in your head magnifies the noise. All the testing that was done wears you out and since I was miles away from home My family was there only a couple of times and that was for about an hour. It was during the last EEG that they found an abnormality. The reason they found it was I fell asleep during the test. In that EEG they located the abnormality and where it was comming from.Using that information they returned to the angeogram and looked closer at that area of my brain. Which is when they found the problem. what they found was scared brain tissue on the left side of my brain. Back then the doctors said it was before or after birth. In the doctors office on the day I was released the doctor gave the information to  my mother. I asked many questions but I didn't get answere directed at me. He gave my mother the information. So I knew I had epilepsy but I was not told what epilepsy was. In the doctors report It said I had Grand Mal, Pettit Mal and Focol Motor epilepsy. Back then there were names for the different epilepsies. After neurologists started specializing the seizures were put in types.

That was the start but it isn't over. I have been living and dealing with epilepsy and seixures since then and it has been 50+ years. The seizures have lessened in their intensity. The Ofcal motor seizures have stopped going into convulsions but they can atill do that if not watched carefully or treated with medications. All the young people (30 or younger) who are diagnosed with epilepsy have no idea that they are lucky to have the technology they have today. They have no idea what we went thru considering the medications today are being created to work on certain types of seizures which does not drug your body and brain down. They have no idea of how to deal with medications we took and the amount of medications that were basically downers. My new neurologist in the early 1980's aske me how I woke up in the morning considering was taking enough phenobarb to put a man to sleep for 24 hours. Now couple that with dilantin and tegratol. Once I was up I did not lay down until the day was over. I crashed in the car while going to and from work or where ever we were going.

This was the start and that start was in 1962-63

The first seizure I was aware of was a grand mal seizure. It started with me being carried into the nurses office in jr high. I found out thru friends and the coaches that while on the basketball court before class one day That I had climed onto 2 benches stacked on top of each other. I pulled the jacked over my head. I pulled my arms into my jacket stood on top of the benches and fell face first onto the asphalt. I went into a convulsion. I came to or woke up while being carried by 4 varsite foot ball players 2 coaches one at my feet one near my head into the nurses office. I said Hi to them and was out again. I woke up that afternoon about 1:30 my motjer had been called and a doctors appointment had been made. We went to the doctors office and I was tested and EEG was done. During the EEG there were no abnormalities. Answering the doctors questions did give him insite. I was put on phenobarb and dilantin. Now understand that that was back in the early 60's so there was no web or other ways for average people to gather information regarding seizures. The doctor who became my PCP and I saw him monthly. In his questions there was have you ever felt different than you normally did. Any wierd feelings anywhere regarding anything.

I had had some wierd feelings in my head from time to time. I had been written up many times for day dreaming and yet my test and quize scores were amont the highest in the class. I had some funny feelings in my right hand. There were times my right hand would start moving without me wanting it to move.

The day dreaming was basically absence seizures. The wierd thing happening with my right hand were what today would be complex partial focal seizures. Other feeling in my head were auras.

It was over a year later and many diffferent seizures that I was put in the hospital to determine what was causing the seizures especially since all the EEG's had shown no abnormalities. I was prepared to have a wonderful spring break but I was not aware until spring break was going to be in the hospital. I was 13 and kids don't think about testing and visits to doctors offices. The tests back then were not like the tests today. There were no MRI's or CT scans. During the hospital stay they ran tests more EEG's some others which can not name. on the 3rd or 4th day they ran a angeogram which has been replaced with MRI's. I do know that during that they also did a spinal tap. What they did do was pump air into my head and took x-rays. I know I would not recomend letting them do that to my worst enemy. after it I woke up laying on my back. You see they cn pump air into your head but the air has to escape on it's own. thru the ears, nose, eye sockets and mouth and that takes time.It is recommended that a person lay flat on their backs for at least 1 day but the bed is raised a little over the next few days. I came too in that bed when the nusre was coming in and the door opening was louder than I wanted to hear it. Her foot steps were like gernades going off. A nurse walks quietly but a nun alks even quieter and back then the nurses were nus in a catholic hospital. the air in your head magnifies the noise. All the testing that was done wears you out and since I was miles away from home My family was there only a couple of times and that was for about an hour. It was during the last EEG that they found an abnormality. The reason they found it was I fell asleep during the test. In that EEG they located the abnormality and where it was comming from.Using that information they returned to the angeogram and looked closer at that area of my brain. Which is when they found the problem. what they found was scared brain tissue on the left side of my brain. Back then the doctors said it was before or after birth. In the doctors office on the day I was released the doctor gave the information to  my mother. I asked many questions but I didn't get answere directed at me. He gave my mother the information. So I knew I had epilepsy but I was not told what epilepsy was. In the doctors report It said I had Grand Mal, Pettit Mal and Focol Motor epilepsy. Back then there were names for the different epilepsies. After neurologists started specializing the seizures were put in types.

That was the start but it isn't over. I have been living and dealing with epilepsy and seixures since then and it has been 50+ years. The seizures have lessened in their intensity. The Ofcal motor seizures have stopped going into convulsions but they can atill do that if not watched carefully or treated with medications. All the young people (30 or younger) who are diagnosed with epilepsy have no idea that they are lucky to have the technology they have today. They have no idea what we went thru considering the medications today are being created to work on certain types of seizures which does not drug your body and brain down. They have no idea of how to deal with medications we took and the amount of medications that were basically downers. My new neurologist in the early 1980's aske me how I woke up in the morning considering was taking enough phenobarb to put a man to sleep for 24 hours. Now couple that with dilantin and tegratol. Once I was up I did not lay down until the day was over. I crashed in the car while going to and from work or where ever we were going.

This was the start and that start was in 1962-63

Re: Would anyone like to share something about their epilepsy?

Submitted by lorianne61 on Thu, 2013-10-31 - 15:57
I have had seizures since I can remember. My first grand mal seizures were before my memories began. I had my first grand mal seizure when my local physician didn't know what it was, at less than 1 yr. old. My first memories of grand mal seizures were in grade school on the playground.I began taking epilepsy medication at age 5, dilantin and phenobarbital. The seizures continued until I reached high school with no one explaining to my classmates what was going on. As a teenager, I began having what are called absence seizures now, petit mal seizures then. These I continue to have today with medication. The grand mal seizures haven't been a problem since my children were born. I wouldn't dare say how many medications I have taken over the years for fear no one would believe me nor would I be able to remember them all without a doctor's file in front of me. I live a somewhat normal life with the only real problem being the inability to drive, but all other activities are within normal activities of "normal people".

Re: Would anyone like to share something about their epilepsy?

Submitted by GKhs4632340 on Thu, 2013-10-31 - 19:19

Hello,

 I am curious about the number of medicines you have taken over the years.  Have you and your doctors talked about other treatment options, e.g. surgery?

I started having epilepsy when I was in elementary school and have had 10 medicines (first-line alone and with add-on) with several first-lines reached their maximum dosage, but nothing worked.  Having no options left, I underwent brain surgery two years ago (it's a long story).  Other than not being able to drive (not because of age) and headache, I live like a "normal person."

Hello,

 I am curious about the number of medicines you have taken over the years.  Have you and your doctors talked about other treatment options, e.g. surgery?

I started having epilepsy when I was in elementary school and have had 10 medicines (first-line alone and with add-on) with several first-lines reached their maximum dosage, but nothing worked.  Having no options left, I underwent brain surgery two years ago (it's a long story).  Other than not being able to drive (not because of age) and headache, I live like a "normal person."

Re: Would anyone like to share something about their epilepsy?

Submitted by UH_Warrior13 on Sat, 2013-11-02 - 14:50

honolulu, O'ahu, Hawai'i

Aloha,

My epilepsy started when I was a school aged child but no one pickd up on it they ll just chalked it up to a behaiour problem.

I had very bizarre behaiour.

I went on thru grade school middle chool and HS and part of college with it not knowing what it was.

It was NOT caught until april of '03  I had a lot of testing including multiplt typed of EEGs and other types of tests.

 I have been thru 2 EMUs uck on the the first one and that was 10days long and then they said it was inconclusive my now neurologist I have had now for almost 7 years got mad and ran his own VEEG and I had 2 staring szs the first night in, and 3 MAJOR complex Partial szs random thru the following 5 days out of the 6 I was in.  All of the szs had to be stopped with IV Ativen.  I have been on mny meds and now have settled on 10 almost 11 yrs on Lamictal, but that is up at 800 mgs, 200 mgs of Topamax, and 3 mgs Klonopin.  I also have a VNS.  Its settings just got chagend from every 5 minutes OFF and 20 seconds ON to 1.8 muinutes OFF and 21 seconds ON.

I had a car accident on dec 3rd of '02 and hit a tree head on, suffered surreed whip-lash, a mild head injury and multiple broken bones.  A broken ankle and a broken collar bone and sereal other ones. 

NO one know if I had a sz while driving or blacked out.  I was taken to the hospital and kept in the neuro observation unit for a few days. 

8 months later I had my fisrt visable sz a grand mal, it was the night before my college graduation.  the next day was a total washout.

The epielspy was finally caught by a snotty neurologist that ran 2 sleep-deprived EEGs and the first one had some nasty activity and the second one was even wrost thean the first one which is how I ended up in that first EMU.

The activity was showing from the antior part of the left temporal lobe.  I was not a candidate for surgery and was slipping downhill fast so they put a VNS in me.  I stated resonding to it with in 2-3 months.  I have had it for 6 yrs replaced onece.

I was having 10-12 szs a day before that was impalanted.

and ny recovery time was an hr.

now I am having abur 3-4 szs a month and recovery time is about 20 minutes.

 

Nancy

honolulu, O'ahu, Hawai'i

Aloha,

My epilepsy started when I was a school aged child but no one pickd up on it they ll just chalked it up to a behaiour problem.

I had very bizarre behaiour.

I went on thru grade school middle chool and HS and part of college with it not knowing what it was.

It was NOT caught until april of '03  I had a lot of testing including multiplt typed of EEGs and other types of tests.

 I have been thru 2 EMUs uck on the the first one and that was 10days long and then they said it was inconclusive my now neurologist I have had now for almost 7 years got mad and ran his own VEEG and I had 2 staring szs the first night in, and 3 MAJOR complex Partial szs random thru the following 5 days out of the 6 I was in.  All of the szs had to be stopped with IV Ativen.  I have been on mny meds and now have settled on 10 almost 11 yrs on Lamictal, but that is up at 800 mgs, 200 mgs of Topamax, and 3 mgs Klonopin.  I also have a VNS.  Its settings just got chagend from every 5 minutes OFF and 20 seconds ON to 1.8 muinutes OFF and 21 seconds ON.

I had a car accident on dec 3rd of '02 and hit a tree head on, suffered surreed whip-lash, a mild head injury and multiple broken bones.  A broken ankle and a broken collar bone and sereal other ones. 

NO one know if I had a sz while driving or blacked out.  I was taken to the hospital and kept in the neuro observation unit for a few days. 

8 months later I had my fisrt visable sz a grand mal, it was the night before my college graduation.  the next day was a total washout.

The epielspy was finally caught by a snotty neurologist that ran 2 sleep-deprived EEGs and the first one had some nasty activity and the second one was even wrost thean the first one which is how I ended up in that first EMU.

The activity was showing from the antior part of the left temporal lobe.  I was not a candidate for surgery and was slipping downhill fast so they put a VNS in me.  I stated resonding to it with in 2-3 months.  I have had it for 6 yrs replaced onece.

I was having 10-12 szs a day before that was impalanted.

and ny recovery time was an hr.

now I am having abur 3-4 szs a month and recovery time is about 20 minutes.

 

Nancy

Re: Would anyone like to share something about their epilepsy?

Submitted by just_joe on Sat, 2013-11-02 - 15:06

Well I will put it this way. My Doc does drug studies on new medicines comming out and the chart of drugs on the wall in the room has over 20 different medications. I have been on almost every one and others that are not on the list. All of the medications I have taken that have generics I have taken the generiics of too. Doc and I have discussed options Like the VNS and even surgery. Those will not work for me since I have no aure before the seizure or I can't mmove during the seizure. SO the VNS is out. Doc had me in a monituring unit and they watched me carefully. I would press the button and inform them when I had a seizure because most of mine are absence or partial seizures. They did an MRI before the EEG. On the last day he was in and was looking at everything they had found. What caused my epilepsy was scared brain tissue he was checking the seizure activity with the MRI and he followed it closely. He also found out that the scar tissue is in more than 1 lobe so surgery is not an option. We have made progress tho. I am on keppra which reduced to number of seizures I was having and the length of time in the seizures as well as the time getting back to normal. We coupled the keppra with vimpat and after I g=had gotten to the dosage we wanted to start with we saw improvement. The vimpat dosage was increased again in august and the number of seizures hav=s been reduced again. I have no problem with the seizures I am having now they have caused problems in hte past but right now I could have a seizure in a crowd and almost everybody in the crowd would not know it. I have been onn hpone calls and had them and I finished the call. Most of my seizures today last a few seconds and the focus time is also in seconds.

Today people talk about side effects or issues they are having. If they are 35 and younger they need to look at what was happening years ago.. In the 1960's people with epilepsy were still being put away in homes away from the public. If they didn't see us they were fine. In the 1970's there were still states who didn't let people with epilepsy get a marriage license. What would the young people do today if they found out that????

Yes people woth epilepsy are having fewer issues becasue more people are becomming aware of epilepsy. More awareness is needed. Which is why we now have this month. Wear your purple and let others know we need assistance.

I can say all this becasue I have been dealing and living with epilepsy for 50+ yeaars.

Well I will put it this way. My Doc does drug studies on new medicines comming out and the chart of drugs on the wall in the room has over 20 different medications. I have been on almost every one and others that are not on the list. All of the medications I have taken that have generics I have taken the generiics of too. Doc and I have discussed options Like the VNS and even surgery. Those will not work for me since I have no aure before the seizure or I can't mmove during the seizure. SO the VNS is out. Doc had me in a monituring unit and they watched me carefully. I would press the button and inform them when I had a seizure because most of mine are absence or partial seizures. They did an MRI before the EEG. On the last day he was in and was looking at everything they had found. What caused my epilepsy was scared brain tissue he was checking the seizure activity with the MRI and he followed it closely. He also found out that the scar tissue is in more than 1 lobe so surgery is not an option. We have made progress tho. I am on keppra which reduced to number of seizures I was having and the length of time in the seizures as well as the time getting back to normal. We coupled the keppra with vimpat and after I g=had gotten to the dosage we wanted to start with we saw improvement. The vimpat dosage was increased again in august and the number of seizures hav=s been reduced again. I have no problem with the seizures I am having now they have caused problems in hte past but right now I could have a seizure in a crowd and almost everybody in the crowd would not know it. I have been onn hpone calls and had them and I finished the call. Most of my seizures today last a few seconds and the focus time is also in seconds.

Today people talk about side effects or issues they are having. If they are 35 and younger they need to look at what was happening years ago.. In the 1960's people with epilepsy were still being put away in homes away from the public. If they didn't see us they were fine. In the 1970's there were still states who didn't let people with epilepsy get a marriage license. What would the young people do today if they found out that????

Yes people woth epilepsy are having fewer issues becasue more people are becomming aware of epilepsy. More awareness is needed. Which is why we now have this month. Wear your purple and let others know we need assistance.

I can say all this becasue I have been dealing and living with epilepsy for 50+ yeaars.

Re: Would anyone like to share something about their epilepsy?

Submitted by just_joe on Fri, 2013-11-01 - 09:32

ahhhhhhhhhhhhhh come on tell us how many meds   LOL

I know what you mean considering I have taken almost every medication created to control seizures. I have also taken most of the medications that have generics.  The seizues I have been having for the last few years are more like absence seizures but I also have different partial and complex partial seizures.

For surgery my current neuro wanted to check and in that study he saw what the original neurologist was but with a little different process. The scar tussue is on the left side of my brais but in more than 1 lobe so surgery was out years ago. Specialization on medications has helped more than most people think because the medications today are being created to work on certain types of seizures when those are used the time in the seizure is less and the time to focus (get back to normal) is also less. Before the total time in th seizure and focusing would have been 5-45 minutes. Now those minutes have changed. I have kept a log and the time now runs 5-45 seconds and up to a minte or 2. Big differeence now is I can still be productive while in the seizure. I have also been in and around people and nad 1 while I was in a conversation and the people I was with knew nothing about the seizure. If I was having a complex partial which stemed off my focal motor epilepsy I might have to wait a little longer because until the seizure completely subsides I can not work with my right hand.

Joe

ahhhhhhhhhhhhhh come on tell us how many meds   LOL

I know what you mean considering I have taken almost every medication created to control seizures. I have also taken most of the medications that have generics.  The seizues I have been having for the last few years are more like absence seizures but I also have different partial and complex partial seizures.

For surgery my current neuro wanted to check and in that study he saw what the original neurologist was but with a little different process. The scar tussue is on the left side of my brais but in more than 1 lobe so surgery was out years ago. Specialization on medications has helped more than most people think because the medications today are being created to work on certain types of seizures when those are used the time in the seizure is less and the time to focus (get back to normal) is also less. Before the total time in th seizure and focusing would have been 5-45 minutes. Now those minutes have changed. I have kept a log and the time now runs 5-45 seconds and up to a minte or 2. Big differeence now is I can still be productive while in the seizure. I have also been in and around people and nad 1 while I was in a conversation and the people I was with knew nothing about the seizure. If I was having a complex partial which stemed off my focal motor epilepsy I might have to wait a little longer because until the seizure completely subsides I can not work with my right hand.

Joe

Re: Would anyone like to share something about their epilepsy?

Submitted by wodiej on Thu, 2013-10-31 - 14:00
Yes, I would. I don't have epilepsy, my partner does. Her mom treats her like a 5 year old and wont' let me take care of her and help her become more independent. She takes her to the hospital all the time and wont' let me see her! The hospital will tell me NOTHING. Her mom says she's in a coma and that was 3 days ago. Hospital aays no one there in a coma. So her mom made the story up so we couldn't see each other. She's likely staying at her parents house and had her phone taken away. I just want to know is she is ok!! She's 32

Re: Would anyone like to share something about their epilepsy?

Submitted by tcameron on Sat, 2013-11-02 - 18:23
Have you considered the Smart Watch?  It looks like a wristwatch but notices seizures, & contacts the person she directs to be contacted.  It can tell the difference between brushing teeth and a seizure! This should take away a lot of fears for her, yourself and her mother.  A 32-year-old deserves to live like an adult.  Info available at smartmonitor.com, and this website.  It was designed by en epileptologist for this very purpose. 

Re: Would anyone like to share something about their epilepsy?

Submitted by kpurdon on Fri, 2013-11-01 - 23:29
It was a week and half before Christmas in 2003 and my sister and I were in Chapters buying some books. I had been up late the night before and was feeling really tired. For the mere second that my sister was grabbing a book I looked up at a light and started to see black dots. I shook my head and rubbed my eyes thinking that was stupid and at that point my sister was ready to leave. As we started walking towards the counter to pay for the books I realized something was wrong. The black dots I saw from looking at the light weren't going away, they were actually getting bigger to the point that all I saw was black. I told my sister to slow down and that something wasn't right and at age 12 she thought I was playing around. She sternly said knock it off and in the instant that she had turned around to give me a look sheer panic had overwhelmed her. This next part I had to be told because I had blacked out and had no recollection of what had happened for the next 10-15 minutes. My sister had no idea what had happened so she came to me as she noticed that I was beginning to fall as I had hit my head off one of the books. She eased me to the ground and started yelling for help. It just so happened that there were 4 off duty nurses there at the time who came to assist us. I woke up in the ambulance long enough to be told that I was on my way to the hospital and that my sister was in the front. I came to as my family was rushing down the hall to check on me. The doctors at first thought it was a one time occurrence as there was no history of it in my family and because it could have been associated with puberty (I was 14 at the time). After two EEG's I was put on Valproic Acid and diagnosed with Epilepsy. During that time, I started getting really bad migraines that would last days at a time and nothing seemed to help it. I still to this day continue to have the migraines 2-4 times a week. I also developed Psoriasis at the same time and at first it was just a small patch on my stomach and now it covers me head to toe. Teachers throughout high school were uneducated on Epilepsy and thus made it difficult for me to come to grips with having this condition. One example of a horrible experience I had in high school was of the ignorance of teachers deliberately putting me in a situation where I could have had a seizure. There was a Elvis impersonator at our school and everyone went and when I got there and the act started I realized that there were strobe lights set up. When I approached a teacher to ask her if i could leave she immediately said no, So I left the room. She came after me and asked what I was doing and I told her "I have Epilepsy!" It was only then that she accommodated to my needs. It was disappointing on my behalf that they put me in that position and then without feeling bad for it left me in a room with a supervisor and returned to the performance. Despite the many setbacks, challenges and bad experiences I have faced I was able to complete high school and obtain a 4 year degree in history. I am now in Teacher's College and am attempting to set up a workshop on Epilepsy to better educate those in my program (potential teachers).

Re: Would anyone like to share something about their epilepsy?

Submitted by ral on Tue, 2013-11-05 - 14:29

I'll share ...

 

 

 

IT S*CKS!!!

I'll share ...

 

 

 

IT S*CKS!!!

Re: Would anyone like to share something about their epilepsy?

Submitted by fortheloveofmusic5 on Tue, 2013-11-05 - 16:54
Hmmm let's see how I started with mine. I was 20yrs old. It was 2011. It was about 11pm driving back home with my middle brother he was the driver and I was the passenger. We were literally 10 mins away from my house at the time I lived in yhe country side so crazy enough 4 horses were loose that night and 1 ended up running into the car, coming from my side of the car. So smashing me through the windshield and my brother but turns out mostly me. By God's grace we somehow survived because the car was completely totalled and practically looked like a convertable, yep, no top. Little mazda car was gone. I was pronounced dead for a minute. But...I am alive! Umm 3 to 4 months after I had my first seizure, yay. Then, was diagnosed with epilepsy due to traumatic brain injury. That's my story. I'm 23 now. Also living with ADHD that I developed because my brain chemistry changed and PTSD. But, I keep going.

Re: Would anyone like to share something about their epilepsy?

Submitted by mereloaded on Wed, 2013-11-06 - 13:23
For my son, it started a few days before his 15 th birthday. He stayed up late at night playing this 3-d video game, then he got up in the morning and I hear him falling in the shower, I opened the door and he was fully conscious, talking and standing, but his arms were moving. Trip to the ER, thy say its nothing go home. 7 weeks later after another all nighter of 3d video games, boom, arms jerking in the morning upon awakening and then a grand mal that aster a few seconds maybe a minute. Turned blue and stopped breathing. Then started to breath and woke up tired, but fine. Trip to the et, ct scans, blod tests, all negative. EEG normal. Was given keppra on the ER and has been taking it ever since. Trip to the neuro and an almost normal EEG later, neuro says is "probably" epilepsy, think he can out grow it. No episodes since and of course video games outlawed in this house. It has been a little over 8 months. Going to see a new neuro because we moved. I am hopeful that it goes away. MRI with and without contrast came normal. Taking day by day and still trying to figure things out. That is my story.

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