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Would anyone like to share something about their epilepsy?
Wed, 10/30/2013 - 01:13How it all started...
Comments
Re: Would anyone like to share something about their epilepsy?
Submitted by fortheloveofmusic5 on Tue, 2013-11-05 - 16:54
Hmmm let's see how I started with mine. I was 20yrs old. It was 2011. It was about 11pm driving back home with my middle brother he was the driver and I was the passenger. We were literally 10 mins away from my house at the time I lived in yhe country side so crazy enough 4 horses were loose that night and 1 ended up running into the car, coming from my side of the car. So smashing me through the windshield and my brother but turns out mostly me. By God's grace we somehow survived because the car was completely totalled and practically looked like a convertable, yep, no top. Little mazda car was gone. I was pronounced dead for a minute. But...I am alive! Umm 3 to 4 months after I had my first seizure, yay. Then, was diagnosed with epilepsy due to traumatic brain injury. That's my story. I'm 23 now. Also living with ADHD that I developed because my brain chemistry changed and PTSD. But, I keep going.
Re: Would anyone like to share something about their epilepsy?
Submitted by mereloaded on Wed, 2013-11-06 - 13:23
For my son, it started a few days before his 15 th birthday. He stayed up late at night playing this 3-d video game, then he got up in the morning and I hear him falling in the shower, I opened the door and he was fully conscious, talking and standing, but his arms were moving. Trip to the ER, thy say its nothing go home. 7 weeks later after another all nighter of 3d video games, boom, arms jerking in the morning upon awakening and then a grand mal that aster a few seconds maybe a minute. Turned blue and stopped breathing. Then started to breath and woke up tired, but fine. Trip to the et, ct scans, blod tests, all negative. EEG normal. Was given keppra on the ER and has been taking it ever since. Trip to the neuro and an almost normal EEG later, neuro says is "probably" epilepsy, think he can out grow it. No episodes since and of course video games outlawed in this house. It has been a little over 8 months. Going to see a new neuro because we moved. I am hopeful that it goes away. MRI with and without contrast came normal. Taking day by day and still trying to figure things out. That is my story.
Re: Would anyone like to share something about their epilepsy?
Submitted by ral on Tue, 2013-11-05 - 14:29
I'll share ...
IT S*CKS!!!
I'll share ...
IT S*CKS!!!