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my son's story with SCN1A

Mon, 01/07/2019 - 15:01
My son was born in 2016 and he started doing seizures from day 1. he's on Epanutin, Topirate and Lepitam/Kepra. He started walking since he was 2 years old and after doing seizures the doctor increased the Topirate doze and now he's not walking anymore. the doctor started now decreasing the Topirate and he increased the Epanutin and we're still not walking. appreciate if anyone can share his experience and advise. My email address is issam_issa@hotmail.com

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