Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

Seizures and appetite

05/2020 | 4 Comments

I was diagnosed with epilepsy when I was 12 , after I had a grand mal seizure in the middle of the street after school. [October 17, 2019] Now it is...

05/2020 | 1 Comments

Seuizer Triggered Age: 2 years 4 months started with finger flicking and eye ball focused on one side. After a month 1 grand mal onset happened...
New to the world of epilepsy

04/2020 | 3 Comments

Hi everyone. My 9 year old was diagnosed with epilepsy last summer and it has been a horrible roller coaster ride. Everytime the meds stabilize my...
The scarring in my brain

04/2020 | 3 Comments

At a young age, so young I remember the experiences in daycares, I would have these so-called "headaches" at random times every few weeks. They...
My son, Keppra and CBD oil ?

02/2020 | 2 Comments

Hello, This is my first time on the forums and looking for some advice. My son is 8 years old and has had mild seizures in the early morning while...
Night twitching

02/2020 | 1 Comments

My son was just diagnosed with Generalized Tonic Clonic Seizures after having 3 a few weeks ago. He is now on Keppra and adding in Lamictal slowly in...
pediatric seizure and meditation

01/2020 | 1 Comments

Our 12 year old son had an atonic seizure about 6 weeks ago. This was his first and only (so far). It occurred while he was listening to Holosync...
Weird seizure today

01/2020 | 3 Comments

Hi I’m new so I was sitting at my kitchen table eating lunch and I started to feel funny so I laid on the ground but the feeling never went away the...

01/2020 | 2 Comments

Hello everyone. Im hoping that this community can give me some hope as right now I am terrified. My 15 year old daughter started having seizures 1...
Jeavons syndrome - Urgent Advice Needed

01/2020 | 2 Comments

Dear All, I hope you can help with some advice. My daughter who is 19 has had arm jolts for many years which are clearly triggered by tiredness. These...
Looking for Advice.

01/2020 | 3 Comments

I'm a 15 year old girl that has epilepsy... obviously. Right now it feels like my world is crashing down around me. Advice to get myself out of this...
My baby on Keprra, help I need advice!!

12/2019 | 1 Comments

My baby was born having seizures, she was put on many different drugs at the beginning to get them under control, she had been taken off of all of...
Someone who is epileptic

12/2019 | 5 Comments

Are there anything that you can’t do that normal people can (watch certain tv shows, play video games)? Have you ever had a seizure because of a TV...
A walking contradiction.

12/2019 | 2 Comments

To so many out there hiding in the dark because you are to scared to be known as different, to those struggling in it finding a job because they see...
My story..

09/2019 | 2 Comments

I was diagnosed with epilepsy on the1st September 2009, and I have been on many drugs, including epilim, Keppra, zonisamide, perampanel and many more...
Uncontrollable diagnosis

08/2019 | 2 Comments

My name is Nate and I'm a 19 year old male. Since about the age of 18 months old I have been having episode like instances where my adopted parents...

08/2019 | 1 Comments

hey how are you im matthew i suffer from absences jerks and tonic clonics im from the uk is anyone around or online i can talk too im 20

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