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Scary
Sat, 07/21/2018 - 01:56Topic: Living With Epilepsy - Youth
When I was 12 I was diagnosed with grand mal epilepsy. My first horrifying expirence was in a Mexican restaurant with my whole family. I was eating and my body just glitched. The feeling right before a seizure when you know you’re not the one in control anymore and there’s nothing you can do about it. Anyways then I had several, several more before I was put on a medication that didn’t work for me so I was put on another one, successfully on it for two years and my neurologist agreed we should try weening off. No seizure meds for 7 months I thought I outgrew it, until I had 3 more grand mal seizures during a 30 day period and ended up back on my medications. But the reason I said I’m new to this is I feel that lately I’ve been expierencing seizures that aren’t grand mals, partials, and absence seizures. It’s so different when your conscious for it and no one else even notices what you you’re going through.
In some ways it is nice when
Submitted by birdman on Sat, 2018-07-21 - 09:05
In some ways it is nice when others do not know the troubles you face. They are more apt to treat you as a "normal" person like themselves. I used to have many more grand mals as a teen and everybody knew I had a significant problem with seizures. But over the years I have had fewer and fewer grand mals and now I am left with simple and complex partial seizures that others often don't know about. Now I am working with a doctor to have brain surgery to implant the RNS system. Brains surgery is a very significant operation yet I almost want to keep it secret because I fear the response that others will give since, like you said, "no one else even notices what you you’re going through". Epilepsy can be a very lonely illness. I hope you can find support through the Epilepsy Foundation and this website.