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Keppra 500mg

Mon, 01/30/2006 - 21:14
Hello; I would like to know if there are any online users that have used or know the drug Keppra for epilepsy. If so, have you heard of or wittinessed the side effect of hair loss? I have seen it written up somewhere in the merck manual and on some web sites. I have been on keppra for 2 years and it was just when the neurologist raised the dosage from 1500mg/day to 3000mg/day that it started by me losing my left eyebrow then it went through the scalp and facial hair? if anyone has information about this , please let me know? thanks

Comments

Re: Keppra 500mg

Submitted by shah22 on Thu, 2008-10-16 - 19:10

I have a 19 year old daughter with Autism & epilepsy who has not been on any seizure meds since 1998. Previous to that she was on phenobarbitol which caused her to have more seizures & depakene (depakote) which slowed down her development & she still had 2 major seizures a year. She is now living in a group home & comes home on weekends. She still has simple partial & complex partial, but has not gone into status. I took her to see a neurologist in feb 2008 but was hesitant to start her on the keppra (dose was 500mg bid) because she is not normal & may not be able to communicate any side effects to me. I am feeling pressured by the people at the group home to get her started on the medication. I'm not sure what to do, although I have asked the doctor to start her off very slowly i.e. 250mg daily for 1 week then 250mg twice daily, then 500mg at bedtime & 250 mg in am & then 500mg twice daily. Still I am afraid she will lose cognitive skills & am worried about migraines or hostile behaviour. What should I do? I am thinking to try her on biofeeback therapy  

 

I have a 19 year old daughter with Autism & epilepsy who has not been on any seizure meds since 1998. Previous to that she was on phenobarbitol which caused her to have more seizures & depakene (depakote) which slowed down her development & she still had 2 major seizures a year. She is now living in a group home & comes home on weekends. She still has simple partial & complex partial, but has not gone into status. I took her to see a neurologist in feb 2008 but was hesitant to start her on the keppra (dose was 500mg bid) because she is not normal & may not be able to communicate any side effects to me. I am feeling pressured by the people at the group home to get her started on the medication. I'm not sure what to do, although I have asked the doctor to start her off very slowly i.e. 250mg daily for 1 week then 250mg twice daily, then 500mg at bedtime & 250 mg in am & then 500mg twice daily. Still I am afraid she will lose cognitive skills & am worried about migraines or hostile behaviour. What should I do? I am thinking to try her on biofeeback therapy  

 

Re: Keppra 500mg

Submitted by Fortaleza on Thu, 2009-06-04 - 13:33

Hello,

I Am A 22 Year Old Male And I Have Been Battling With Epilepsy My Entire Life. I Am Currently Taking 2 500mg Tablets Of Levetiracetam (Keppra) Daily. I Have Been Seizure Free For 7 Years Now. I Noticed When I Was First Put On Keppra. I Guess I Was 15 At The Time When I Started To Notice That Some Of My Hair Was Missing. Not A Whole Lot But It Was Semetrical In Every Way And Perfectly Noticeable. I Began To Worry And Asked My Doctor About My Devastating Hair Loss. He Said It Was A Side Effect Of Keppra But It Was Somewhat Temporary. I Must Say I Was Under A Lot Of Stress At The Time Being With School, Sports And Of Course.. Keppra. Fortunatly My Hair Started Growing Back Little By Little I Started Noticing A Little More Hair. So Dont Give Up Hope All You Guys Will Get Through I Have Awesome Faith Your Seizures Will Seize One Day Soon To Come. You Guys Are Always In My Prairs. I Know How Though It Is To Live With Epilepsy But Just Hold On In There And You'll See That This Was Mearly A Test Of Our Hope. And To All You Parents Out There, DONT GIVE UP ON YOUR CHILD!!! I Understand The Desperation Clinching In Your Fist. But My Mom Never Gave Up On Me No Matter How Hard Times Were. Listen tTo Me When I Say Everything Will End Up Fine. I Know 2 Friends Of Mine Who Are Totally Seizure Free Now And Carry On Normal Lives. I Am Able To Drive Now And Soon Be Married I Will Post Up When Ever I Can Meanwhile Stay Strong And Carry On. 

Truly Yours,

Fortaleza 

Hello,

I Am A 22 Year Old Male And I Have Been Battling With Epilepsy My Entire Life. I Am Currently Taking 2 500mg Tablets Of Levetiracetam (Keppra) Daily. I Have Been Seizure Free For 7 Years Now. I Noticed When I Was First Put On Keppra. I Guess I Was 15 At The Time When I Started To Notice That Some Of My Hair Was Missing. Not A Whole Lot But It Was Semetrical In Every Way And Perfectly Noticeable. I Began To Worry And Asked My Doctor About My Devastating Hair Loss. He Said It Was A Side Effect Of Keppra But It Was Somewhat Temporary. I Must Say I Was Under A Lot Of Stress At The Time Being With School, Sports And Of Course.. Keppra. Fortunatly My Hair Started Growing Back Little By Little I Started Noticing A Little More Hair. So Dont Give Up Hope All You Guys Will Get Through I Have Awesome Faith Your Seizures Will Seize One Day Soon To Come. You Guys Are Always In My Prairs. I Know How Though It Is To Live With Epilepsy But Just Hold On In There And You'll See That This Was Mearly A Test Of Our Hope. And To All You Parents Out There, DONT GIVE UP ON YOUR CHILD!!! I Understand The Desperation Clinching In Your Fist. But My Mom Never Gave Up On Me No Matter How Hard Times Were. Listen tTo Me When I Say Everything Will End Up Fine. I Know 2 Friends Of Mine Who Are Totally Seizure Free Now And Carry On Normal Lives. I Am Able To Drive Now And Soon Be Married I Will Post Up When Ever I Can Meanwhile Stay Strong And Carry On. 

Truly Yours,

Fortaleza 

Re: Keppra 500mg

Submitted by George R on Thu, 2009-06-04 - 19:13

Loss of Hair & Strength !! Oh yes, I do notice both, but have gotten used to my different look by merely getting very short haircuts and allowing myself heretofore impossible afternoon naps. No, I do not like the negative aspects of Keppra, but I've been on it for 10 years, and can see that my seizures are milder. Usually one a month, they happen during sleep. Except when I'm extremely overtired, and then I'll be hit by two seizures within a few hours of the same day. I take 2000mg of Keppra per day, though I began on 3000mg per day. We're seeing how the lower amount works. Don't get depressed by the negative aspects of these pills. After all, everything we consume (even desserts) have something about them that is there to criticize!

Loss of Hair & Strength !! Oh yes, I do notice both, but have gotten used to my different look by merely getting very short haircuts and allowing myself heretofore impossible afternoon naps. No, I do not like the negative aspects of Keppra, but I've been on it for 10 years, and can see that my seizures are milder. Usually one a month, they happen during sleep. Except when I'm extremely overtired, and then I'll be hit by two seizures within a few hours of the same day. I take 2000mg of Keppra per day, though I began on 3000mg per day. We're seeing how the lower amount works. Don't get depressed by the negative aspects of these pills. After all, everything we consume (even desserts) have something about them that is there to criticize!

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