Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

meds for absence and tonic clonic seizures

Wed, 05/11/2005 - 22:58
Hi, my son is 7 years old and one and a half years ago he was diagnosed with absence seizures and then 6 months ago he started with tonic clonic seizures, he has just come out of hospital after spending 12 days there, he was having seizures every hour (tonic clonic) for the first 8 days and then he was just having the absences every 20 minutes. he was taking epillim and lamictal and he got worse, then they put him on epillim, and ethosuximide and clobazam, now they want to replace the ethosuximide with topamax, i have told them i can't give this medication to my son, the side affects are really horrendous, and i can't give my child a drug which will cause greater harm. Does anyone have any ideas about which drug combinations seem to work for absences and tonic clonic, because some drugs for tonic clonic can make absences worse and visa versa. I know all drugs have some kind of side affects but some are just not worth it, I feel i owe it to my child to make some kind of informed choice for him without causing him to become so forgetful that he can't add 1 +1 . Any advice would be much appreciated, i am so devestated by this and i am so scared for him. thanks, from a desperate mother.

Comments

RE: RE: RE: meds for absence and tonic clonic seizures

Submitted by mommy on Thu, 2005-05-12 - 16:02
Good luck to you and your children.

RE: RE: RE: RE: meds for absence and tonic clonic seizures

Submitted by pongosmommy on Thu, 2005-05-12 - 19:43
Best of luck to all of you Moms (oops and Dads) that are out there dealing with this. It breaks my heart to see little ones struggling with this. And the pain you all must feel watching them and trying to do what if best for them. I must say I admire all of your abilities and will wish for strength for you all, and for your childrenDayna

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.