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Prolonged seizure, post-ictal state

Thu, 10/24/2013 - 23:37
I was diagnosed with having a seizure in July. I am 50 years old. I had seen my psychiatrist and he told me later that I had been "acting odd", although he really couldn't define why he felt that way. I fell when I stood up, no injury, and I left the office. From there on, I can't remember. I was told that I went to my car in the parking lot, called my father on my cell and told him that I was in a location (not where I was) and that I needed a ride. He said he tried to question me but I hung up. Then I went back to the doc's office. I was told I was talking strange. Then the police came. I had left the car running with my purse in the unlocked car. Someone called the police worried about an possible abduction. At some point I left the office and was looking under chairs in the lobby. Someone brought me back to the office and stayed with me until my father came to pick me up. He drove me to the ER. I "came to" late the next day, over 24 hours later. I had had an 2 MRIs, a CT scan, blood work and an EEG during that time that I had no memory of. I slept most of the next two days, still in the hospital. The only thing that was abnormal was the EEG, which showed activity in the left temporal region. I was already on Lamictal for my bipolar disorder, so they just kept me on that until my next visit. When I saw the neurologist as an outpatient, he told me that I might have temporal lobe epilepsy and that I had a seizure. He said I could take an other med (Vimpat) if I felt I needed it. WTF? I had been having auras for years but didn't realize that was what you called them. In any case, I'm not getting answers from him, he only saw me for 5 minutes in the office the other day. I am going to get another neurologist, one who specializes in epilepsy. In any case, I haven't read anything online that talks about seizures that last more than a few minutes with some confusion after. What part was the seizure, and what part was the confusion/recovery? Had anyone else experienced anything like this, the prolonged, involved seizure event? I'm terrified of having another one, and with my doctor telling me that I should call if I felt I needed to increase my dose, I have no idea what to do next. Any suggestions would be appreciated!

Comments

Re: Prolonged seizure, post-ictal state

Submitted by just_joe on Fri, 2013-10-25 - 16:13

Afternoon

I read your post and the comment in response you your post and your answer to the response.

If you have been on mrfication which is a good med. However after being on a med for a period of time the dosage needs to be changed or a medication needs to be added.

Auras are different with people some are generally warnings to possiable seizures in some others are a lapse of time in others. The event you posted is more like a cluster of seizres which is different than a cluster seizure. What most people do not think about is a seizure may be an absence seizure but they can morph into lartial seizures which can morph into complex partial and so on and so on. A cluster of seizures if a seizure that hits you and before you get back to normal you get hit with another seizure followed by another.

I would suggest you get the My Epilepsy Diary which can be found near the top of this page. GO there and see what to do with it and how to use it considering it can give the neurologist information which can be used to come up with different procedures medications and the information could also help you.

I have many types of seizures but I also know when I am having them and which type they are.

Hope this helps

Afternoon

I read your post and the comment in response you your post and your answer to the response.

If you have been on mrfication which is a good med. However after being on a med for a period of time the dosage needs to be changed or a medication needs to be added.

Auras are different with people some are generally warnings to possiable seizures in some others are a lapse of time in others. The event you posted is more like a cluster of seizres which is different than a cluster seizure. What most people do not think about is a seizure may be an absence seizure but they can morph into lartial seizures which can morph into complex partial and so on and so on. A cluster of seizures if a seizure that hits you and before you get back to normal you get hit with another seizure followed by another.

I would suggest you get the My Epilepsy Diary which can be found near the top of this page. GO there and see what to do with it and how to use it considering it can give the neurologist information which can be used to come up with different procedures medications and the information could also help you.

I have many types of seizures but I also know when I am having them and which type they are.

Hope this helps

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