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2 year old w/new seizures

Thu, 11/28/2013 - 15:33
Hi all-needing some support over this long holiday weekend before I google myself into submission... My son is almost 2, and received a diagnosis of hypotonia around 1 year old. He has been in PT and ST since, and is also under the care of a pediatric neurologist. He has had bloodwork (CBC, thyroid, metabolic profile, chromosome analysis (full only, not partial), etc) that all came back normal. A few months ago, we started to notice him doing a strange eye flutter- his eyes sort of roll back, he lifts his head a bit, and his eyes blink rapidly. It only lasts for 3-5 seconds, and he seems to be aware of his surroundings during the event (he'll continue trying to out his fork in his mouth, etc). The events seem to happen when he is tired or frustrated. The neurologist suggested an EEG, but felt that it was probably behavioral. A few weeks ago, the eye blinking escalated into what I'm certain were two absence seizures- unresponsive, drooling, etc. they were on the same day, and each lasted less than 20 seconds. We had the EEG, which we were told was "very abnormal" especially during sleep. Of course, our follow up appt was cancelled bc the neuros wife had twins. Then this past thursDay, the blinking episodes became so frequent that he was disoriented, etc. I got in touch with another neuro in the office, who sent me to our ped. He had several episodes while she examined him. She phone conferenced with the neuro and they put him immediately on topomax. We saw 2 minor blinking episodes the next morning, but since then, nothing. Other than those 2 instances, the blink g never escalated into an absence. We had an MRI yesterday, but of course no one will read it until next week. My poor little guy is a zombie on the meds. :( We'll finally he to see our neurologist Next Thursday, but that is such an eternity away... Can anyone help me step away from dr google? Is the fact that the blinking stopped immediately with meds a good sign? I can't even figure out what type of seizures these are since he seemed aware when they were happening. Why would they be worse during sleep? I'm terrified. Get the MRI results. I do have a family history of epilepsy (sister and paternal grandmother) so I'm trying to remind myself that all signs point to childhood epilepsy, not a brain tumor or injury. Help a scared mama out...

Comments

Hi! I just wanted to know if

Submitted by airagamos@gmail.com on Tue, 2014-04-08 - 01:28
Hi! I just wanted to know if what type of seizure my son has? he is now 2 1/2 years old. and lately he experience continuous jerk that last for 1-2 mins. usually the jerk is in the shoulder. but when it is happening he is conscious and even complaint at me to the point that he himself got angry that he can not control the movement. Is there hope that this type of seizure would disappear if he reach the age of adolescent. He is now taking maintenance for 1 month already and the name of the med is depakene syrup. Somebody told me that epilepsy may disappear when reaching the age of 7 or above. How true is it?

This is a test follow up.

Submitted by brucecronlund on Mon, 2014-05-12 - 12:59
This is a test follow up. Please disregard.

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