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7 month old with unknown seizure disorder
Tue, 12/27/2005 - 22:11Topic: Parents & Caregivers
Hi, I am looking for any advice out there. My 7 month old daughter had a full body seizure approx 1 month ago. She was taken to the children's hospital via ambulance. The seizure lasted for 19 mins, valium was given to stop it. She was admitted to the hospital. Her CT, spinal tap, EEG and blood work were all normal. She was released and didn't have another seizure for 2 weeks. The 2nd, 3rd and 4th seizures were isolated to either her right or left side of her body and her neck and head. She was sent home after the 3rd seizure on Phenobarbitol and her dosage was increased after the 4th seizure. She had a 5th seizure on Monday that lasted for over 2 hrs. She was hospitalized and she had a normal MRI and we are still waiting for the results from the EEG. She is on Phenobarbitol, Dilatin and a third drug that I am not sure of the name of. She can't hold up her head and she can't even look at me. I feel like I have lost my baby and I am not sure what to do to help her. Thank you
Comments
Re: Re: Re: 7 month old with unknown seizure disorder
Submitted by angel_lts on Fri, 2005-12-30 - 21:48
Do you know how your baby got the bacteria in the blood? I hate phenobarbital, I was on it for 28 years or so.
As for topamax it gave me seizures, but does not mean it will happen to your baby. I dont know much about babies and topamax.
But as for the bacteria, yes it could have caused the seizures.
Take care
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Please contact me at
Submitted by grandmame on Mon, 2006-01-09 - 09:28
Please contact me at sugar_70427@yahoo.com my grandson is having this same problem. when he was 2 months old he had his first noticable seizure. He has not been able to hold his head up. He was so alert now at the age of 6 months he is like a new born perhap we can help each other I hope to here from you soon
Re: Re: 7 month old with unknown seizure disorder
Submitted by schuffert on Thu, 2005-12-29 - 15:39
Well they have taken her off of the Dilatin and she is doing much better; still not herself by far, but a lot more alert. The neuro plans to send her home on Phenobarbitol and Topamax, then slowly ween her off of the Phenobarbitol. Her EEG was normal. They did find bacteria in her blood and they put her on antibiotics (not in her spinal fluid). Could this have anything to do with her seizures? How safe is the Topamax?