Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

Don't know what to do!

12/2006 | 4 Comments

Hi 3 years ago my son had his first seizure, walking around staring and then layed down and for 3 hours did not talk but could recognize. #2 while...
I need to know how to cope!!!

12/2006 | 11 Comments

Dear Parents, I sure need some help. I have a 9 year old girl who has been diagnosed with absence seizures. she has been taking valporic acid now...
Epilepsy. Is it or isn't it????

12/2006 | 12 Comments

Here is our story/frustration at having our son properly diagnosed. Winter of 2000 - Child male age 5 - No seizure history. Healthy Happy. Oldest of 4...
positive stories for Christmas

12/2006 | 3 Comments

Ok Guys, We are taking our almost 3 year old son in for his MRI and Spinal Tap today. It has been a tough go, as he had a pretty severe cluster of...
teacher problems

12/2006 | 5 Comments

It just doesn't seem to end with this particular reg. ed. teacher that my son must endure everyday. We thought in the beginning of the school year she...
Tegretol /Carbamazepine

12/2006 | 1 Comments

Does anyone have a child that is three or close to this age that is taking Cabamazepine which is generic for Tegretol? My son is three and has had...
BRE diag w/out text book eeg

12/2006 | 7 Comments

Hi, I wondered if anyone knows or has been diagnosed with Benign Rolandic when the eeg does not have typical pattern? I have talked to one mom who...
Tough Day 2 minute grand Mal

11/2006 | 5 Comments

Okay guys tonight I am sad! My 2 1/2 year old son Fletcher, just had a 2 minute tonic-clonic on my bathroom floor! It took him 10 seconds to start...
Non Doctor Opinion

11/2006 | 1 Comments

I am still very new to all of this. My daughter has abnormal brain waves on the left side and some all over. I went to the pediat. neuro and he gave...
My 15 year old Daughter

11/2006 | 2 Comments

My daughter was very normal up until last year when she was 14 year old. The only thing she had was that she had febrile fits at 4 when she was sck...
Keppra

11/2006 | 4 Comments

My 22 month old just got precribed Keppra. She is the most energetic and fun loving kid ever! The only time she has seizures (it has only happened 4...
I need some parental adivce - badly

11/2006 | 7 Comments

My daughter Mac has had absence seizures for approximately the last year and is currently on Depakote ER 1250mg a day. Things were going great the...
22 Month old new to this need some HELP!

11/2006 | 1 Comments

My 22 month old started at 20 months to have small episodes where when woken up out of a deep sleep her arms would shoot out and eyes roll up (not...
intro

11/2006 | 2 Comments

I thought I'd introduce ourselves...I'm Kristy, mom to Matthew. Matt was born with a very severe form of Epilepsy. He's had so many seizures...
ketogenic Dieting

11/2006 | 0 Comments

KetogenicDieting.com I have found has had great articles.

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