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Do your seizure symptoms match these?

Wed, 02/05/2020 - 18:11

Topic: Share Your Story

fter having many severe episodes that I will describe below, an EEG showed seizure tendencies. I have now been using Keppra for about 3 months but am now having more episodes. The problem is, the neurologists (2 that I have seen) say that they have not seen seizures that manifest in the way that mine do (if these are indeed seizures). I get severe vertigo and vomiting for two hours or more, along with a great deal of sweating and a feeling that I will lose control of my bowels. I cannot move during these episodes; the vertigo is like extreme spinning. It comes on in seconds without warning sometimes, even waking me from a deep sleep. Other times I have felt like I could tell it was coming on for a few days. Does anyone have anything similar? these are very violent and frightening episodes.

Comments

Hi, Thank you for posting. It

Submitted by Anonymous on Thu, 2020-02-06 - 09:56

Hi, Thank you for posting. It’s important that you're following-up with your healthcare team to explore this further and if you continue to experience any changes in symptoms, side effects, moods or behaviors. If you have not already, you may want to consider getting a second opinion or seeing epileptologist (epilepsy specialist). https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Seizures and auras can take on many different forms and affect different people in different ways. Some commonly reported symptoms before, during and after a seizure include, nausea or other stomach feelings (often a rising feeling from the stomach to the throat), sweating, lose of bowel control, and feeling lightheaded or dizzy. To learn more about seizures and auras, please visit: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizureUsing a journal or a diary to document how you’re feeling in detail, (like you've done in your post) and providing a thorough medical and family history (impossible), will be very helpful to review with your healthcare team. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking these episodes you’ve experienced, triggers, recording medical history, setting reminders, managing medications & side effects, moods, behaviors, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting. It’s important that you're following-up with your healthcare team to explore this further and if you continue to experience any changes in symptoms, side effects,  moods or behaviors. If you have not already, you may want to consider getting a second opinion or seeing epileptologist (epilepsy specialist). https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Seizures and auras can take on many different forms and affect different people in different ways. Some commonly reported symptoms before, during and after a seizure include, nausea or other stomach feelings (often a rising feeling from the stomach to the throat), sweating, lose of bowel control, and feeling lightheaded or dizzy. To learn more about seizures and auras, please visit: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizureUsing a journal or a diary to document how you’re feeling in detail, (like you've done in your post) and providing a thorough medical and family history (impossible), will be very helpful to review with your healthcare team. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking these episodes you’ve experienced, triggers, recording medical history, setting reminders, managing medications & side effects, moods, behaviors, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

I have posted several

Submitted by irangel on Fri, 2020-02-07 - 20:48

I have posted several responses related to your symptoms. What caught my attention was when you stated about the 2 neurologists that you had seen and, thus you stated.....".....they have not seen seizures that manifest in the way that mine do (if these are indeed seizures) . "If you can (and if you must then utilize the assistance of the volunteers behind this epilepsy forum, I would believe that they would be willing/capable of doing so to then see what I have posted), please read what I have posted about my own discoveries of what triggers my epilepsy events across multi-chats that I have responded to.Irma

Thank you very much. How do

Submitted by fizzics on Sat, 2020-02-08 - 09:48

Thank you very much. How do I go about finding your posts?

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