Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Trying to understand

10/2017 | 1 Comments

I was born will epilepsy mother noticed me steering into space at 18 months old. As I got older the seizures continued to get worse. At age 40 I had...
RNS Implants

10/2017 | 2 Comments

Looking for information from any individuals who had an RNS implant. When did you have it and are you satisfied?
RNS implant

10/2017 | 2 Comments

I am interested in gathering information from anyone who has had an RNS implant to stop seizures. What has been your experience, good bad or...
I hope someone has gone through this also

10/2017 | 4 Comments

I just started having issues with having seizures about a month and a half ago and since then things have been going crazy. My first issue was when i...
Is there a way out?

10/2017 | 3 Comments

I'm a 48 yr. man who has had gran mal seizures since 10 yrs. old. After an EEG by a neurologist I was told I had epilepsy. Frontal lobe damage. How...
Where to go from here ...

10/2017 | 4 Comments

I'm a mother to a 23 yr old, he was a 6, 5 month premature baby. After the initial 3 ICU months, I thought the heartache was over, I was finally...
Started with seizures at 51 years olx

10/2017 | 2 Comments

Hello, looking for chats that I get speak with for additional help. I have stared have seizures in 2015 they are have always been during my sleep i...
Where it all started..

10/2017 | 3 Comments

I was on the phone when all of a sudden this feeling of something awful was going to happen washed over me. The next thing I remember was waking up in...
Scary Partial Seizures

10/2017 | 2 Comments

Hello, first Post. About 5 years ago I first had a major seizure (where I was unconscious) after withdrawing from alcohol one day. A few months later...
Scared Teen

10/2017 | 4 Comments

I've had a sezuire when I was two, four, and eight. Each time I went and saw a neurologist. They all told me that if I didn't have another one in six...
Brand new

10/2017 | 3 Comments

I just found out less than a week ago that I am epileptic. I know nothing about it I have my first seizure about two months ago. Me and my daughter...
Complex partial seizures

09/2017 | 6 Comments

Hey there fellas. My wife has Epilepsy, diagnosed with complex partial seizures since she was four years old. She is now 24. The last medication she...
Improvement in my epilepsy

09/2017 | 3 Comments

I was diagnosed with epilepsy at the age of 6 months and been on medication as far as I can remember. I am now 44. I suffered with it really badly...
Story of my girlfriend

09/2017 | 3 Comments

Hello everyone. I am new here and I'd like to share the story of my girlfriend who is suffering from epilepsy since she was 5 years old. After taking...
Seizurez

09/2017 | 3 Comments

I was never once healthy only I wish I was , not going ago a few days it was I stoped breathing couldn't talk right after multiple seizures they say...
Can my seizures be related to a surgery?

09/2017 | 3 Comments

I am a 32 year old male who has lived a pretty healthy life without seizures up until I received an inguinal hernia operation. I had complications...

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