Community Forum Archive

Hi, Thank you for posting. It’s important that you all are able to work with a healthcare team that you are most comfortable with. If you all have not already you may want to consider seeking more specialized care for his epilepsy at an epilepsy center. A comprehensive epilepsy center is a group of health care professionals who specialize in the diagnosis, care, and treatment of people with seizures and epilepsy. Usually led by an epileptologist, (epilepsy specialist), who can help explore all treatment options and determine what individual treatment plan maybe best for him. Epilepsy centers can also help connect you with additional support groups, educational sessions and connecting you with other families.  https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-center .  Many clinics and offices are now offering telemedicine options for non-emergencies, or routine check-in appointments. Ask her doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you can utilize, or if they can make any additional recommendations for him. Contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , who can help connect you all with epilepsy centers near you and provide additional information. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline  

Hi Kacy my 9 yr old daughter just had a left temporal lobectomy at Arnold palmer in Orlando due to her epilepsy that was not controlled with meds. Her brain surgeon was Dr Oliverria and I have nothing but good things to say about his team.