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Alone with kids and had a seizure...
Mon, 04/24/2006 - 18:19Topic: Women With Epilepsy
Hi everyone,
I'm new to this forum and thought it might be time for me to find someone to talk to who can understand how I'm feeling. I'm a 36 yr old sahm of a 6 yr old girl and 8 yr old boy. I've been taking Dilantin since I was 14 yrs old and my seizures have been very well controlled since I finished college. Since then I average having one grand-mal every 2-3 yrs. My husband travels with his job and is away from home a lot of the time, so I am the sole caretaker of our kids. Last month, I unexpectedly had a grand-mal. My 8 yr old called my husband on speed dial, then eventually called 911. I was fine, but it was a traumatic experience for everyone involved. The ER dr said my dilantin level was 10. (I have no family living near either) So just when all of us were beginning to forget about the incident and put it behind us, I had another one this past saturday night. (alone again with my babies) I went to my dr. this morning and they did a stat level -- it as 12. So she is increasing my Dilantin by 100mg daily. (So now I will be taking 400mg daily). Also, I began taking Lexapro a couple of mos. ago. Does anyone think these 2 seizures could be caused by it? My Dr. suggested I stop taking it for now if I felt comfortable without it. I would just love to hear an opinion about my situation: Anyone have any knowledge as to why levels drop? (In the past I remember my dr. saying I did better when my levels were at 14 - 16) Do you think by taking the extra 100mg daily I will get my seizures under control?
Thanks for any feedback/opinions; I really need a friend.
Grifgraysmom
Comments
Re: Re: Alone with kids and had a seizure...
Submitted by lab138 on Mon, 2006-08-07 - 02:13
I have had seizures since I was 16 and I had my first child when I was 19 he is now 13 and is the best caretaker when I have a seizure and my daughter is 8 she is just as smart. I have made it a point since they were both born to include them in everything...doc visits, tests. I have a VNS implant and well they both know how to use it so it just made a big difference in their lives and mine for them to know everything about seizures. I love my children more than well you know and I use to feel guilty but my son god love him told me not to worry about that I should just focus on the future and how much worse some other people have it. I never knew he was so wise and he was only 7 when he said that to me. My daughter is just as smart and I am glad for one thing this has taught my children not to be scared of anyone with any kind of disabilities. My son helps at school in that department anyone with a disability he is right there to help if he can, same goes for my daughter and my children are as different as night and day but both recieved the same message.
Re: Alone with kids and had a seizure...
Submitted by dolphinnickinick on Thu, 2006-07-20 - 23:44
hi mom i am 29 and have 3 kids ages 7,9,10. I have had seizures since i was 12 and i have them often so my kids are pretty use to this. they have seen me have many but for the first time ever I had one when i was alone with them a few months ago. we had already disscused what to do if this ever happened so they got a neighbor and called 911. yes it upset them but they handled it well. just let you son know u are proud of him and he did what should have been. but at least you know he is able to handle situations like this well good luck with your seizures!!!