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Astrocytoma

Fri, 09/08/2006 - 08:05
Ok ladies i have posted before but i havent been on for a while. Just so you know i have a 2 year old daughter, when i became pregnant with her i started having seizures, and they told me that i have epilepsy. Well in June i had 3 seizures in a row and while at the hospital they did a cat scan, i had a high fever and bad headache, which i knew the headache was from the seizures, specially that many in a row ya know. Well the doctor comes and tells me that i need to make sure that this cyst, that was located on the right side of my head in the back, i needed to make sure with my doctors that it hasnt changed at all. Well i was like wait a minute i was never told anything about any cyst and he just kept telling me i needed to talk to my doctor. Well the next day i went to my doctors well he talked to me about it and said he wanted me to go to a nerologist and so i did and he was great but right away he told me that it wasnt just a cyst that it was a tumor so i was kinda freaked out ya know. Well then he sent me to a nero surgen who told me that it was a small tumor and it had a rather large fluid filled cyst with a tail around it and he scheduled surgery in 2 weeks and mris and stuff. Well a week after the surgery i called to see if they had the biopsy results and my nero surgens assistand said not yet and then the next day my actual nerosurgen calls me an tells me it is cancer. When i first talked to him he said there was a 5% chance that it would be cancerouse and that there was a 75% chance no more seizures, well i have no luck. So now i get to have mris every 3 months for the next ten years and along with the list of docs i have i now have a cancer doctor whos great. Its just so not fair i am 22 years old with a whole life ahead of me. There no going to do chemo or anything right now because they removed the whole tumor but if i get more there going to either have to do surgery again or chemo or the other crap. Well i need to go ladies please feel free to post.

Comments

Re: Astrocytoma

Submitted by angel_lts on Fri, 2006-09-08 - 12:29
Wow what a story, I am so sorry to hear about the problems you are having. I am sure it is very hard on you. But do as your doctor tells you and stay STRONG! You have to stay strong for yourself and your family. Are you having the same amount of seizures STILL? I will pray for you. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Re: Astrocytoma

Submitted by KyliesMom on Fri, 2006-09-08 - 15:25
i have not had any yet so we will have to see but as long as i am on my meds like i am suppose to then i should be ok. I have like 9 of them its not fun because i also found out i have a thyroid problem too i was like ok what next you know.

Re: Re: Re: Astrocytoma

Submitted by forestams on Fri, 2006-09-08 - 19:54
Good Luck! I hope your seizures don't return. I had a benign brain tumor removed after I started having my seizures and luckily it wasn't cancer but they didn't get it all- and never will the bugger is around an artery- the knives only go so deep ;P I know it's a pain to keep going back and back and back and keeping your fingers crossed each time that everything will be okay but eventually you will just be such a pro you'll hear someone else talking about getting an mri and you'll be like - suck it up dude it's nothing- You'll also get very familiar with your lovely brain pictures- try to keep em if you can that's my tip of the day- at some point you'll see some other neuro or neurosurgeon maybe for a second opinion for god only knows what- i have several times- and getting copies can be a pain in the butt. And stay strong- and make sure someone else is with you- i think I cried at every followup appointment to my surgeon for the first year(i was 20 at the time- now 25) and if my parents hadn't been there i don't think i would've realized the surgeon was actualy giving me good news finally the third time - one year after my surgery- that the thing hadn't grown! It's hard but unfortunatly it's a part of you now. Just makes you wonder how many other people have scars under their hair out there doesn't it? ;) Take care of yourself and your little one! Amanda

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