Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
No diagnosis/need help
Tue, 01/23/2007 - 11:14Topic: Women With Epilepsy
I've had epileptic seizures since I was 19. I'm about to turn 29. I've had two neurologists and neither have given me a diagnosis other than "It's genetic". Well no one in my family is aware of any history of epilepsy. I had a grand mal on 1/5 after being "weaned" of Depakote". My neurologist told the ER doctor to do a pregnancy test although my tubes are tied. They didn't do a CT. I've only had one MRI done, when I was 19. My doctor has only performed EEGs and sent me for blood tests. He put me on Lamictal after the seizure. My husband and I are fed up and ready to travel if necessary. I'm in NC. Does anyone have suggestions on what I should do?
Thanks
Comments
Re: Hi.. I'd suggest you look
Submitted by psimons78 on Tue, 2007-01-23 - 22:02
Thanks for taking the time to reply. I will look for an epileptologist and see what we can find out.
Paula
Re: No diagnosis/need help
Submitted by maraj on Tue, 2007-01-23 - 15:43
I completely agree -- look for an epileptologist. I went to too many general neurologist, who really did not provide me with the best care. Not that they were bad doctors, but they did not have specialized knowledge of epilepsy.
BTW - I have JME, which is genetic. I also don't know of anyone in my family who had/has epilepsy.
Hi.. I'd suggest you look
Submitted by solis on Tue, 2007-01-23 - 12:50
Hi.. I'd suggest you look for an epileptologist. Despite having E since I was a very young child, and seeing many neurologists, I was never controlled until I saw an epileptologist. To find an epileptologist (a neurologist that specializes in E) in the USA, go to www.epilepsy.com.. top of the page & third from the left. When you add your location, it will list all the neurologists in your district. Then you can phone them and inquire if any is an epileptologist. Of those on the list from my city.. all were epileptologists. wishing you the best, ~sol