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support-help-discussions
Wed, 05/04/2005 - 10:43Topic: Women With Epilepsy
I have tried several times to post with little or no luck in responses and am begining to wonder if this site is just for a few people in "clicks: or do you ever talk to newbies? I am 44 professional career women who hasnt had a seizure until this last year, the first happening way back when i was six and had a terrible head injury. Then after some 30 years of medicine and complications from side effects it stopped, only to return this last year with vengence. I suffer from atonic seizures due to uncontrolled pressure from an unhealed skull fracture that is calcifying. (spelling) Anyways, after 7 years in the workforce they have come back, the seizures. Are there others out there with a similar issue, regarding returning of seizures and interfering with work? I am facing complications of work since the large case load and overtime is triggering seizures. So far only my boss knows, and i have return to taking phenibaritol but refuse to go back to high dosage of medicine that in the past only added to my low self esteem. I desperately would like to talk to others, and have found no active chat rooms, nor others to response. If this site is for those in "clicks" than someone msg me and tell me so i dont waste my time anymore. otherwise sos help,
Comments
Support-Help -Discussion
Submitted by pipercub49 on Fri, 2005-09-30 - 22:34
HI Lastkiss,
I am new here. I am uaable to work because of my seizures.And it eally can be hard at times. But this is a very nice Support Group. I started having gran mal seizures in 1997. the past 3 years I have not been able to wrok and am on SSD. Just got on that. I am luckly that I have a great husband. But alot of times I feel right now that I am being baby sat. Like if he goes out for any length of time he wants to see if I want to go to a fiends. That probablly is cause I have had seizures at home and been alone and got hurt. Just today I was going to walk to the hospital and have my blood work done and he freaked out.Now he is in bed with pneumonia. So I thought why not. But just this past Tuesday I had 7 seizures in the parking lot of an appointment he was at. I was out having a smoke. So I am so vey lucky i have him. And I am glad I join this group. I think you have to give it a chance. Mary
Hi Liz
Submitted by yannie44 on Sat, 2005-10-01 - 09:27
You are in the right place for support. This site is filled with people with huge hearts and fortunately/unfortunately much experience with seizures and epilepsy. I personally don't have a lot of experience behind me but wish you well and hope you will persevere with E.com.
Some of us have been exchanging info for months but we were all new at some stage and know how you feel. The prob recently is that the format of this Forum has changed drastically and many of us felt quite lost and a bit abandoned as we had come to rely on the emotional as well as the informative support we had all found here.
Suddenly questions were going unanswered or ending up in a Blog instead of the forum etc. We found it easier, albeit irritating obvoiusly to others, to throw around a few lighthearted quips and see where they went rather than bare our souls with emotional queries that might not be read or responded to as we grappled with the new format (when you're elderly(46) and emotional, change can be a pain in the behind!)
Enough blabbing- please hang in there and hopefully the support you are seeking will find you.
Maryanne :)
*just a thought... I think that unless someone is specifically checking the 'womens' issues' forum they may not read your post (maybe I'm wrong) but if you post it in the "General" discussion topics it is more likely to be responded to :)
Hey Liz...
Submitted by Kaya579 on Wed, 2005-09-14 - 10:07
I understand. I am 30, have had seizures for 10 years and my boyfriend and I are struggling. I can't work as much as i'd like, so money is tight. Meds have changed alot, my old doc was an idiot, the new one is scheduling tests like crazy (yeah*) and i'm too emotional nowadays. It keeps getting worse, like all the consequences of being epileptic it seems. I am in need of friends and people who want to give and receive support. Write to me, we'll talk. -Kelly