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Experience with severe seizures alleviated with surgery

Hey all! Usually, I don't like to post something general and rather undefined, but I don't want to read a general summary on google, I want actual stories and opinions... Well, I suppose that's a pretty bland statement for not asking anything yet... So, I want to know of an incident where someone was fine for a while - seizures mild. Then progressively got worse until they ended up hospitalized and in a state of constant seizures/recovery from one until surgery. What is this called? How does it happen? "What's the time frame? If I know what it's called, I can do some research myself, but if you have anything you want to share about your experiences, please tell me. I'm writing and I want to be accurate and not soap operah-ish; have a story line that would happen realistically. Please, if you have the time, point me in the right direction. Thanks for your help!!! Caboose.

Comments

Call me curious: What

Call me curious:
What consitutes a mild or a severe seizure?
The length of time they last, or what 'others' see?

There are only 3 types of seizures than could even possibly be aided by surgery (and there are over 40 types of E)
1)Simple partial seizures
2)Complex partial seizures
3)Secondarily generalized seizures

Teaching people ,who know nothing about the subject, that surgery fixes all for E (while true in 'a few' cases) ,IMO, is not the message that needs to get relayed.

A far bigger truth the public needs to learn is:
1) what E is (Not demon possession..and ,yes, many still believe that)
2)that most people with E will have it for the remainder of their lives.
3)that E doesn't generally affect intellect
&
4)that the majority of those with E are completely controlled and silent about their E (due to discrimination that still exists).

It's time the public learned to understand and 'accept' E, just as they do other medical conditions.

Re: Call me curious: What

Thank you, Curious. :)

I'm not writing a textbook or a book designed to teach people directly. It's not an in your face type of writing, but I do agree that the last thing I want to do is lead people to false conclusions based on a fictional novel that already are intrinsic in an uninformed society.

In learning for my writing, I am also choosing to learn for myself. It's not published, so it could be stopping at me and my circle of readers.

What I meant by mild and severe is more to do with frequency than the signs or symptoms. Though my tonic clonics last a while and I'm all screwy in one way or another for days, I don't have them very often. I'd term that mild. If I had one every three hours and never fully recovered from the previous, I'd think that was a lot worse, (previously known as the artist "severe").

I think I covered your truths pretty well in the story line. Since you bring it up, I think I should stress more of #1, as my book is a mystery/thriller of sorts.

Thanks again, Sollis. Tell me if you think of anything else that needs to be addressed or detailed. It's cool to learn what people think is important to point out in the given scenario.

Caboose.

Re: Experience with severe seizures alleviated with surgery

anybody about to have surgery to alleviate, the seizures. well i am, I would like to talk to somebody who already had the surgery so I know what it is like. I am feeling all sorts of nervous and upset right now and could use someone to talk with who already has done what i have to do. Thank you so much

Hi kimberly, I had surgery

Hi kimberly,

I had surgery over a year ago..so if you want to write me, feel free.
There is also a discussion thread on surgery in this community:
http://my.epilepsy.com/?q=forum/20

Hi Caboose,

re: 'serious' I personally 100% agree with your discription.
Best of luck in your writing.

~sol

Re: Experience with severe seizures alleviated with surgery

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