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Im getting surgery on the 25th

Hi everyone, my name is Christine. Im 21, and I was diagnosed with a cavernous hemangioma in October 2006. I had two seizures from it, a petit-mal/partial(?) last August, and the grand-mal in October. Im currently on two medications, Dilantin and Lamactal(sp?). Ive had two MRIs done already.... and the cavernous hemangioma is on the right top side of my head. I have the first MRI scans of my head here at these links if you wanna see. These were taken a day after my seizure....and you can even see the slight hemmorrage around the lesion- http://img.photobucket.com/albums/v55/rockinsteady/Scan0002.jpg http://img.photobucket.com/albums/v55/rockinsteady/Scan0001.jpg Its about an inch or two in diameter (the leison itself). (as for the most recent MRI, ill be seeing those results tomorrow.) Im SUPPOSED to be getting this sucker out this month, on the 25th. But Im just really nervous. Its a "right frontal lobe craniotomy with frameless" (thats what it said on my surgery letter).... what exactly does "frameless" mean in terms of this surgery? Id really like to know. Besides from all those tubes theyre gonna stick in me and the surgery itself, Im nervous on how I will be after the surgery. Can anyone give me some advice on what Im going to expect after surgery? How I will be feeling, what theyre going to do with me, etc.... And the tube that they stick in your nose which goes down your stomach......is it really bothersome and painful? My biggest fear is also waking up in the middle of operation... will that happen? Silly question, I know.

Comments

Re: Im getting surgery on the 25th

anyone? :(

Hi pixiedust, As one who had

Hi pixiedust,

As one who had surgery just over a year ago, know I wish you the best of luck.

~sol

Re: Re: Im getting surgery on the 25th

Hi Pixie,

I can't really answer your questions, as my surgery was different than yours. My head was in the stereotactic frame, and I was "out" the entire time. I don't know if they are going to want you to be awke during any part of the surgery? Good question for the surgeon though.

I wish you the best of luck, hope that everything goes well! Take care!

Heather

*refractory seizure surgery on left temporal lobe 03/06*

Re: Im getting surgery on the 25th

Christine,

Some brain surgery is done with the head mounted in a "stereotactic frame". It fixes the head in a given position and is used to "aim" the medical instruments based on the information gleaned from the diagnostic imaging. One would assume that "frameless" means they won't be using the frame, and it appears that frameless surgery is a more recent and presumably better technique.

I'm not sure how to comment on how you might feel post-op. I had temporal lobe surgery in 2003, so I can only tell you how I felt. The following link details the lead-up to my surgery and the post-op recovery:

http://www3.ns.sympatico.ca/kkehoe/epilepsy/main.html

Kevin

Re: Re: Im getting surgery on the 25th

Kevin,

I will be going in next month. I went on line to that web site and was looking over the surgery and the post surgery sections. Is that what you had to go through as well ?? AAAAGGGGGG

Re: Re: Re: Im getting surgery on the 25th

DMH,

Go through as well? I don't understand. If you're referring to the link I posted, it is actually what *I* went through, documented by myself as best as I can describe/remember all the details.

Kevin

Re: Re: Re: Re: Im getting surgery on the 25th

Hi Kevin,
I am very sorry, I had just glanced at it the first time and e-mailed you back. I went back to the site and printed out the entire thing and read it in detail. It sounded terribly painful. It was the first article or comment I have actually seen where someone had spoken of their own procedure in such detail.
Thanks, Dawn

Re: Re: Re: Re: Re: Im getting surgery on the 25th

Dawn,

No problem! Yeah, it was painful, but pain is so subjective that I wouldn't want to quantify it as "really painful" or "sort of painful", etc.

All I can really say is that I'd do it again, given the same experience and outcome and I don't want you to make a decision based on it being painful.

Kevin

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