Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

my Left temporal lobe experience-be ware

I haven't been back since my surgery in January/Feb. I have a hard time reading all of these happy stories about surgery success because mine wasn't that way. When they did my grid mapping, they found my speech was overlapping my memory and they couldn't remove the area of my hippocampus in order to make me seizure free. I was very and still am very depressed and angry because I went that far for nothing. Plus, I ended up with a blood clot in my leg from the hip to my ankle and it is still 50 to 80% blocked and I have to wear compression hose in 80-90 degree weather. I can't exercise because of it. They had to put a filter in my vena cava to prevent clot from breaking and moving into my lungs and giving me a pulmanary embolism and I have to have that surgically rotated every 4 weeks to keep it from being permanent. Well after the 3rd time, it had clot on it and they couldn't move it. I found a breast lump in march that they are keeping an eye on. I go back in Sept. to have it checked. Someone please encourage me!! I have faith but dang...I sure am being tested! Honestly right now I don't know how much more I can take.

Comments

Re: my Left temporal lobe experience-be ware

Dear Mulleca,
I am so sorry to hear about all the complications related to surgery--I am speechless that you have had to go through all of this...I really don't know what to say. My heart goes out to you--I'm so sorry--I'll say a little prayer for you. Where did you have your surgery done, and were they able to remove anything? Did your seizures change afterwards? I am wondering because I am deciding whether or not to have surgery on my LTL....I also have speech and memory on my left side. If you feel up to giving me a little information, I would very much appreciate it, and damnit, you're a STRONG person--I know you'll come through with FLYING colors!!!!!
Best,
KR

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P