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should i have surgery

right temperal lobe

Comments

Re: should i have surgery

Hi there,

I'd recommend that you read the questions/concerns/experiences in the surgery issues section of this site. It's a little difficult to answer your question, as it is a very personal decision and we have no idea what you are experiencing (past & present). Surgery is a l-o-n-g road, and answering your question (without having any idea of what you've gone through) feels overwhelming to me.

I would be happy to share my opinion (and that's all it is), but I need more info. Good luck to you!

Heather :)

Hi chelle, :) Heather is a

Hi chelle, :)

Heather is a wise person :) and, both she and I have gone though E surgery.

Re your question:
First, IMO, there are many questions you need to ask yourself re: expectations, meds, surgery tests, etc.

Sadly: not all those with temporal lobe E even qualify for surgery. That depends on pre-surgery test results.
And, even if you should qualify, before going into it you then MUST understand that even E-surgery is NOT guaranteed to eliminate all seizures.
The 'success rate' varies. (For temporal lobe surgery, I was given a 70% guarantee. I believe this US site has a slightly higher guarantee.)

"After 1 year, 58% of the patients who had undergone surgery had not experienced a complex partial seizure (a seizure that impairs consciousness), and 38% had not experienced any seizures, including auras. In contrast, only 8% of the patients treated with medication were free of complex partial seizures, and 3% had no seizures. For the patients treated with surgery who continued to have some seizures, they were less frequent than in the other group, but the severity was similar."
http://www.epilepsy.com/epilepsy/surgery_results.html

Considerable info; re: surgery tests, opinions, & results of E surgery patients, can be found under other comments on this site.

best wishes,
~sol

Re: Hi chelle, :) Heather is a

chelle my friend/ My problem left side temporal lobe,
My MRI report 2 doctors say no. One mistake will put me in a wheel chair. I want to find the surgeon who can help, I have been advised of a Neurosurgeon for more advise and find a way.
I still have confidence. If permitted I will give results.
best of luck. Brian.

Re: Re: Hi chelle, :) Heather is a

meeciamecia, Hello Heather. I have been asking myself the same question over & over; when it pops back up in my head. My neurologist ever so often ask's me that to see if I might have changed my mind. But so far I have yet to even find a little reason to change my mind. Is surgery something that you or anyone should recommend to anyone?I have heard more for one side then the other.What is your take? Kecia

Re: should i have surgery

You've got to answer this one for yourself, and it isn't an easy decision.

I went through the process for my wife, she was the one living with the seizures, I had no memory of them except for the sore muscles and the loss of time I had afterwards.

The process is long, it can be painful and all I got through were the preliminaries, at the point of depth electrodes they found that I wasn't a candidate, up until that time they felt that I was.

Again, it is something that you have to decide for yourself.

Had I not had the studies done leading up to surgery I might very well not be here. They weren't able to do surgery, but they did find that the seizures were having an effect on my heart, slowing the heartrate down drastically in a very short amount of time. One pacemaker later and the effects of the seizures are drastically diminished.

But that was me.

Talk with your doctors, speak with friends and family, look for support where you can. Something will come to you....

Re: should i have surgery

Hi Chelle,
Should you have surgery? I say Yes! I asked myself that same question 3 years ago and I was very hesitant saying yes to myself. I went through so many tests and they all pointed to yes, I am an excellent candidate for a right temporal lobectomy. It was very scary and it took me about 6 months to fully make the decision to have it. I went through with it and I am glad I did. I was 24 years old then.

I will be up front and honest. It did not completely eliminate my seizures but it made a drastic change in the frequency and side effects of the seizures. It made a huge difference in the way I live my life. I used to have 4-6 partial complex seizures a month and they were very obvious to others around me when I had them. They lasted between 2-4 minutes and after I had one it made the rest of my day so blurry that I could hardly remember what I did all day. I would have a headache, muscle pains and an upset stomach for hours after the seizure.

Since I had the surgery, I have maybe one or two seizures a month and they last maybe 10 seconds. Sometimes I do even know I had one, if I actually did have one, since they are so short and do not produce the side effects they used to.

I say Go For It!!! What do you have to lose? Maybe some hair and hopefully all of the seizures. You will never know until you try. I was scared to do it but I am so glad I did. If you are worried about the way you will look after the surgery, just remember they do make wigs and your hair will grow back.

It was worth it to me and I'd recommend it to anyone who is a candidate. Good Luck

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