Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
thoughts @ VNS and Feeling sorry
Thu, 03/24/2005 - 18:51Comments
RE: thoughts @ VNS and Feeling sorry
Submitted by 38benny on Tue, 2005-03-22 - 16:12
HEY THERE... number one - The VNS isn't everyones cup of tea... I love mine - but thats just me - I don't mind the voice change or any little "problems" that people say they have. It helps my seizures go "bye bye birdie" - and thats just fine by me - so hey cool.
BUT ... on to what you were saying about appologizing for having a seizure - THATS ME - all the time - I'm always told "why are you saying you're sorry its not your fault" but I still feel like I should take ownership of the problem - I mean the seizure did come out of my body - right? But then I look at the other side of the coin and say "you know - their right - its the little creature torturing me inside... I didn't do it on purpose... its not like stealing a cookie from the cookie jar when you were a kid - so don't worry about it. Just take a deep breath and let the situation go into history like it didn't happen. Others will forget about it... maybe you should too. Thats what I had to learn. Otherwise you will be beating yourself up over something you have absolutely no control over. And that my friend is never a good thing.
JoAnne
HEY THERE... number one - The VNS isn't everyones cup of tea... I love mine - but thats just me - I don't mind the voice change or any little "problems" that people say they have. It helps my seizures go "bye bye birdie" - and thats just fine by me - so hey cool.
BUT ... on to what you were saying about appologizing for having a seizure - THATS ME - all the time - I'm always told "why are you saying you're sorry its not your fault" but I still feel like I should take ownership of the problem - I mean the seizure did come out of my body - right? But then I look at the other side of the coin and say "you know - their right - its the little creature torturing me inside... I didn't do it on purpose... its not like stealing a cookie from the cookie jar when you were a kid - so don't worry about it. Just take a deep breath and let the situation go into history like it didn't happen. Others will forget about it... maybe you should too. Thats what I had to learn. Otherwise you will be beating yourself up over something you have absolutely no control over. And that my friend is never a good thing.
JoAnne
RE: thoughts @ VNS and Feeling sorry
Submitted by batman on Mon, 2005-03-21 - 17:57
Cedar,
I have epilepsy myself and many years ago was informed about the VNS. But after hearing just a few things here and there, I said to myself that there is no way that I'm going to get this implanted in my body. Primarily because of the x number of years of having to get the battery changed, and typical routine item recalls.
Anyway, I am a member of several other online support groups, and on one [BrainTalk Communities - http://brain.hastypastry.net/forums/] someone replied with a weblink to the VNS Message Board. It alone, is a online support group for people with the VNS. Joining registration necessary for it too.
http://s4.invisionfree.com/VNS_Message_Board/index.php?act=idx
I wish you the best of luck with all that's still in your future. Just hang on tight.
Bruce CJ
Cedar,
I have epilepsy myself and many years ago was informed about the VNS. But after hearing just a few things here and there, I said to myself that there is no way that I'm going to get this implanted in my body. Primarily because of the x number of years of having to get the battery changed, and typical routine item recalls.
Anyway, I am a member of several other online support groups, and on one [BrainTalk Communities - http://brain.hastypastry.net/forums/] someone replied with a weblink to the VNS Message Board. It alone, is a online support group for people with the VNS. Joining registration necessary for it too.
http://s4.invisionfree.com/VNS_Message_Board/index.php?act=idx
I wish you the best of luck with all that's still in your future. Just hang on tight.
Bruce CJ