vns

&nbsp; My name is Nancy and I am 34 yrs old.&nbsp; I was iimplnated at that age last sept 20th.&nbsp; I had heard some things thta made me scared but my neuro gave me no choice.&nbsp; He told me itwas the only option for me .&nbsp; I was not a candidtate for brain surgery.&nbsp; I have a syndrome called Mixed Seizure Pattern, with 6 types.&nbsp; T/Cs, Drop Attacks, Absences, Tonics, Simple ANd COmplex Partial szs. &nbsp;I have&nbsp; combo of both Gen and Pc szs adn the VNS is working VERY well for me.&nbsp; Right now it is at 1.75 amps adn the last log I turned int omy neuro had 19 sz-free days and 4 days that had szs in them and one night with a sz in it.&nbsp;&nbsp; He etold me I might be one of the lucky ones and be inthe 5%&nbsp;&nbsp;&nbsp; population that goes sz-free with a lowered dose of meds.&nbsp; We are getting closer adn closer to tht point intime.&nbsp; the Drop attaks are the las ones to tryadn get rid of.&nbsp; They are stubborn.&nbsp; Don't cancel it is worth it down the long run for his ake.&nbsp; It will&nbsp; give hiem reliefl. &nbsp;Some&nbsp; docs don't turn them onuntil weeks after they are implnated adn some immedeatley after the suegery.&nbsp; My neuro had them turn mine on right from the OR. They surgery takeks an hrto do.&nbsp; The make an iscnsion in the left shest where&nbsp; the generator goes and then they thread the lead along the skin of the neck up tothe vagus nere adn wrap 3 electrodes around the nerve in 3 different places and then anchor them in place.&nbsp; Then they attach the end of the lead to the generator adn turn it on after checking it adn the battery before leaving the OR. Most pts are sent home the same day. The cut intthe neck is the mostpainful one.&nbsp; I will not lie to you abou that one.&nbsp; IT does HURT!.&nbsp; THey make you wear a magent around your wrsitto swipethe device if you feel an arou or a sz coming on or during a sz.&nbsp; That is an atetempt to stop it.&nbsp; As it gets turned up it will have more of an effect on teh szs adn be abel to stop more of them or the aura an be albe to abprt the szs compltetly beforethey even start.&nbsp; but that will tale some time.&nbsp; Mine can already dothat becasue I ahve been worked up tothatpoint. &nbsp;Need to know more e-mail me at <a href="mailto:la_desierta_nina@yahoo.com">la_desierta_nina@yahoo.com</a>&nbsp; I will try and answer bettter than on here. I hope I have helped some.&nbsp; Nancy &nbsp;