Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Friday, March 08, 2024
From Low Self-Esteem to Sharing My Story
Growing up, I was a very happy and healthy kid with no health concerns. Then, one day at a summer camp back in 2011, my health changed for the worse...
Tuesday, February 27, 2024
Shedding Light on the Struggles of Living With Epilepsy
I remember the first time I had an absence seizure . I was in my fifth-grade math class when I decided to raise my hand to answer a question asked by...
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
Thursday, April 13, 2023
My Journey with Epilepsy
My life with epilepsy has been very interesting. I was not diagnosed until I was 20 years old and, I had never heard of the condition. I was lost. I...
Honoring the Memory of Kate
“What is the matter with Kate?” There was never an easy answer to that question. Our daughter Kate had her first tonic-clonic seizure unexpectedly in...