Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Diagnostic Dilemmas and Testing

1 1/2 year old with possible seizures

07/2015 | 0 Comments

My daughter just turned 1 1/2 and she has had 3 episodes in the last 3 months where she wakes up between 4-5 am with a terrified cry followed by rapid...
I need help please!

07/2015 | 0 Comments

I think I may be having seizures, but I'm not sure. It started a while ago, when I'd getting this feeling in my stomach, and my eyes would twitch open...
JME

06/2015 | 1 Comments

Anyone having weird headache on left or right of the head? Or pain on the eye? Nerves shakiness? Help!
Discharged from the EMU

06/2015 | 2 Comments

I give yall props that can stay here for a full week. Only been here 4 days and I'm done! So I had two episodes while being here and no epileptic...
completely confused :(

06/2015 | 3 Comments

I posted a few posts down regarding my 9 year old son. He had 2 eegs which showed epileptic activity during hyperventilation and photo stimulation...
Looking for help interpeting EEG

06/2015 | 1 Comments

My nerologist said my EEG was normal - I downloaded it from online and just read it - It says it's "Abnormal" 18 channel EEG done in the awake and...
Problems with specialist

06/2015 | 8 Comments

so I just had my epileptologist appointment today and at first it went well. I ended up having a breakthrough during my appointment. During my...
Deja Vu leading to sick feeling

06/2015 | 24 Comments

Hi, I'm a 22 year old female. For the past two months I've been having bad déjà vu episodes with a nauseous feeling. I can't concentrat on anything...
my 9 year old son just getting diagnosed

06/2015 | 4 Comments

I really hope any of you can help me understand whats going on with my son. He has been diagnosed with epilepsy and his neurologist said that the...
30 years for diagnosis

06/2015 | 0 Comments

Hello all! Yesterday I was diagnosed with epilepsy and I'm thrilled. Sound crazy? I'm not. Nearly thirty years ago (after the birth of my daughter) I...
EMU

06/2015 | 1 Comments

I am going in for an EMU next Friday and I am starting to feel a bit aprehensive. Not for the reasons you may think. This is the second EMU I have had...
Confused by Diagnosis

05/2015 | 1 Comments

Hoping somewhere here may have had a similar experience or some insight into the diagnosis process because I am really confused by my doctors... My...
Simple Partials? Or something else?

05/2015 | 0 Comments

The last two months of my life have been absolute hell. I've been bouncing from doctor to doctor trying to describe the strange feeling that happened...
Advice from where to go now

05/2015 | 1 Comments

hi, I suffered a grand mall seizure about 11 months ago which was believed to have been caused by stress and since I have had a few episodes where I...
Help- I think I had my first seizure

05/2015 | 0 Comments

So the other day I was super tired so I slept in really late only to wake up with an upset stomach. I thought I needed to poop since I was nauseous so...

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