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Unsure if I will start medication for my daughter?

Mon, 11/11/2013 - 21:55
Hi There, My daughter was diagnosed with epilepsy yesterday after her second seizure (tonic clonic I think) she is 4 1/4. I am extremely unsure if i should start the Epilim like the paed has advised. To me it sounds really full on and I would be more comfortable waiting for a 3rd seizure so I know it's definitely Epilepsy and if there is some sort of pattern or how regular they are. If she was older I would medicate straight away but as she is always in my supervision at this age I feel it's less dangerous. The paed said seizures don't hurt them it's the fall etc when they happen? Just a scared new mum unsure of what to do! I feel we just walked in the doc said take this and I'll see you in 3 months BYE!!! By the way her EEG was normal. Hope to hear from some of you experienced with Epilepsy. Thanks in advance x x x

Comments

Re: Unsure if I will start medication for my daughter?

Submitted by samsec on Tue, 2013-11-12 - 16:03
Thank you so much to you both for replying! Why would my doctor say seizures aren't dangerous?? He was adamant they don 't hurt you? You're replies definitely make me feel a little more at ease with medicating! I am walking on eggshells and can't leave my daughters side.

Re: Unsure if I will start medication for my daughter?

Submitted by mereloaded on Tue, 2013-11-12 - 20:43
What he meant about the seizures itself not being dangerous is that you can snap back to normal. Some people get back to normal in minutes, others hours or even days, so the seizure itself is self resolving for the most art, HoWEVER, constant seizure activity or uncontrolled epilepsy can make you loose your memory, impair your ability to focus and learn, isolate you. Also, if you are taking a bath, eating, going down stair, driving etc. it can cause injury. Sometimes you stop breathing when you are having convulsions, turn blue, that can damage your brain due to lack of oxygen. Not trying to scare you or nothing, just wanted to make you aware of the risks, articulacy sudep, someone that no one wants to talk about. I had also trouble with medicating my son, but now my son is back, he has straight as in school, is in high school sports, takes ap classes. He is focused. Best eishes

Re: Unsure if I will start medication for my daughter?

Submitted by just_joe on Tue, 2013-11-12 - 21:50

I know you are considering I saw mine on egg shells many times. As for seizures them selves they do take energy out of the person having them.

When people say their tongue was bitten welllllllllllll what generally happens is when they fall and go into the seizure their head hits something and when hitting ther head their jaws slap together and if their tongue happens to get in the way that is when they bite their tongue. That has happened to me a couple of times. Other then that I have gotten a few scrapes and a few bruises.

It does take adjusting the medication and raising or lowering the dosage to find the right medication or combination of medications. Also understand that medicines today are being created to work on types of seizures rather then drugging down the entire central nervious system.

She is young and and developing and the medications today will let her develope normally. She will do what other kids her age will do

Oh and I do hope you are thinking about the seizure diary sine you can note things that happened with her during each day. If she has a seizure you can write down the length of time in the seizure and the time it took for her to get back to normal. One of the first questions you will be asked if how many seizures has she had and that info will be in the diary so no hesitation and no forgetting the paper that had the seizure written down. I know since I have been asked for years.

Please let us know how she is doing and do post somethng if you have questions you need answers to. I come in here at least once a day if not 2-3 times. Others are regulars too.

We know what it is like trying to get the information needed and we want to help.

Hope you feel better and she gets the assistance she needs and becomes seizure free. Oh and that doea happen. My cousin is proof of that

Joe

Joe

I know you are considering I saw mine on egg shells many times. As for seizures them selves they do take energy out of the person having them.

When people say their tongue was bitten welllllllllllll what generally happens is when they fall and go into the seizure their head hits something and when hitting ther head their jaws slap together and if their tongue happens to get in the way that is when they bite their tongue. That has happened to me a couple of times. Other then that I have gotten a few scrapes and a few bruises.

It does take adjusting the medication and raising or lowering the dosage to find the right medication or combination of medications. Also understand that medicines today are being created to work on types of seizures rather then drugging down the entire central nervious system.

She is young and and developing and the medications today will let her develope normally. She will do what other kids her age will do

Oh and I do hope you are thinking about the seizure diary sine you can note things that happened with her during each day. If she has a seizure you can write down the length of time in the seizure and the time it took for her to get back to normal. One of the first questions you will be asked if how many seizures has she had and that info will be in the diary so no hesitation and no forgetting the paper that had the seizure written down. I know since I have been asked for years.

Please let us know how she is doing and do post somethng if you have questions you need answers to. I come in here at least once a day if not 2-3 times. Others are regulars too.

We know what it is like trying to get the information needed and we want to help.

Hope you feel better and she gets the assistance she needs and becomes seizure free. Oh and that doea happen. My cousin is proof of that

Joe

Joe

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