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Unsure if I will start medication for my daughter?
Mon, 11/11/2013 - 21:55Topic: Medication Issues
Hi There,
My daughter was diagnosed with epilepsy yesterday after her second seizure (tonic clonic I think) she is 4 1/4.
I am extremely unsure if i should start the Epilim like the paed has advised. To me it sounds really full on and I would be more comfortable waiting for a 3rd seizure so I know it's definitely Epilepsy and if there is some sort of pattern or how regular they are.
If she was older I would medicate straight away but as she is always in my supervision at this age I feel it's less dangerous.
The paed said seizures don't hurt them it's the fall etc when they happen?
Just a scared new mum unsure of what to do!
I feel we just walked in the doc said take this and I'll see you in 3 months BYE!!!
By the way her EEG was normal.
Hope to hear from some of you experienced with Epilepsy.
Thanks in advance x x x
Re: Unsure if I will start medication for my daughter?
Submitted by mereloaded on Tue, 2013-11-12 - 12:57
This is what you need to consider, will the medication improve her life? I am a mom of a son with epilepsy, his showed at 15 years of age. I was scarred too to put him in a medication as I even then knew that once you start taking them, it would be for life ,ore than likely, but after seeing my son going into a horrific grand mal seizure, I decided that it was best that he will be medicated as a sort of "insurance" so he won't get another one. He has been on keppra 500 twice daily and has been on remission for nearly 9 precious months. Grand mals can cause cognitive impairment and uncontrolled epilepsy can cause injury and death. Please google SUDEP. I totally understand what you are saying. My son was put on anticonvulsants in the emergency room after only one grand mal seizure with no EEG or MRI. Yes, it is possible to have normal EEGs and mris and still have epilepsy. My son has had so far 2 ct scans both normal, MRI of the brain with and without contrast, normal, one normal EEG and another EEG that was mostly normal with the exception od a 1 second inconclusive wave while he was asleep. A lot f people need longer EEGs to be able to see anything. If people get nothing on a 1 hour EEG, then they can do a 24 hour one, some people have week long EEGs! Best wishes.