seizures

Re: seizures

Submitted by bergje on Fri, 2009-05-01 - 09:22

Sue,

My girlfriend didn't realize that my sudden mood changes were due to seizures, and quite frankly at first neither did I.  The complex partials I have apparently make me very umm, mean i guess is the "pc" term.  I also have seizures while I sleep, and that caused some upset at the beginning as well.  I have one of the best girls in the world because she went from fighting with me and wanting to leave, we lived together at the time, because I was almost always an a-hole, when we'd fight I wouldn't remember it(because I was seizing), and after my postictal i'd act like there was nothing wrong because I didn't know there was a problem.  It was like that up until I realized I was suffering from seizures again, and I sat her down and told her that I have a history of them, and I'm having them again, and she's actually been a huge help since.  We sometimes have to sleep in different beds because of my nocturnal seizures(not tonic/clonic, complex partials which moves me enough to annoy her), and she's gotten to where she can tell i'm going to have a seizure before I can.  I still have memory problems, but we've also been working on that together.  She also has been helping me apply for disability and for a service dog.

Does he have seizures every night?  If so, then you may want to make different sleeping arangements.  If it's less frequent, you could continue to stay in the same bed/room, maybe you guys can have a system where if he feels the aura or prodrome where you can "bail out" to another room or bed.

Re: seizures

Submitted by bergje on Fri, 2009-05-01 - 10:04

i talked to my girlfriend since i posted my last one here.  she said that the way she copes is by spending more time with me, because it helps her realize that it's not a constant thing.  she said that she was scared when it first started happening, but now it's just worry because she read through this site's information on epilepsy, and now knows the difference between a "normal" seizure and an emergency.  i would recommend you do the same, from what i understand about gran mauls it has to do with time.  just make sure that there's nothing near him that he can injure himself with, and time the episode as close as you can, because that can be important for his neurologist.  while my seizures arent the same as your husband's, we both do have seizures, i hope this helps.  if you have any questions for me or my girlfriend, shoot me an email