Community Forum Archive

Psychic-Type Epilepsy?

Fri, 11/08/2013 - 11:54

Hi Community,

I just responded to another person's question with my story, but I decided to reach a larger group by posting myself.

I had a major gran mal a little more than a year ago. I thought it was my first, though I was 45 then. After many discussions with my wonder Mayo Clinic doctors, 2 EEG studies, and 2 MRIs, it is confirmed that I have had epilepsy all my life. One side of my hippocampus is shruken and scarred. Mesial Temporal Scelrosis, I believe it's called.

I had no seizures during either of my EEGs. So after the last one, I was given a surprising diagnosis: Epilepsy- Psychic Type. I had never heard of this before, and actually thought the doctor made it up to appease me, but it is real.

This is very hard for me to accept on the one hand, because I always thought my psychic abilities were a spiritual gift, not syptoms of a disease. One the other hand, I feel quite vindicated to know that I am not crazy, or mentally ill. I have since decided epilepsy and psychic ability don't have to be two different things. But it is hard for me to tell, when I am noticing a psychic event, if that is an aura or not. I have never had a gran mal seizure while on a ghost hunt. I only have them while I am asleep on the couch, or perhaps at night. So are my psychic abilities themselves seizures? One doctor in my Mayo Clinic group thinks that, yes, these are seizures. Which means I am having seizures all day, every day, despite 1,000 mg's of Keppra a day.

Is there another person on this forum, or any doctor, who has any experience or knowledge of my particular diagnosis?

 

Thanks

 

Comments

Re: Psychic-Type Epilepsy?

Submitted by thesary on Fri, 2013-11-08 - 17:29
Hi radiosmom, You have addressed something here that I consider to be very personal and private, that I would very much like to talk about further. I have had... suspicions of such things for myself. I am 25, originally diagnosed with epilepsy when I was 3 years old. I have shared your experience, but have never been sure how much I could associate it with my epilepsy. I hadn't really heard of "psychic epilepsy" as a diagnosis. For quite some time, though, they thought that I may be having "psychogenic" seizures, as my seizures were not showing up electrically. In the last 6 months or so, it was learned that I have partial seizures caused by a cortical displasia which could not be found by EEG because................. (no one knows) If my psychic experiences are seizures, then I, too, am having them all day, every day. My seizures have never been able to be controlled by medication, and after 20 years I am still trying. Recently, brain surgery was presented as an option for me, and all of my hesitations come from this one thought: Will this remove these psychic/spiritual/whateveryouwanttocallthem gifts? They are so much a part of me, and I believe they may well be connected. I wrote my thesis using this particular theory, and I will say that there is much history that does support the relationship between seizure activity and psychic activity. If you think about it, it makes sense. A seizure, loosely defined, is only something working not-quite-right in your brain... in other words, not normal. Apparently, psychic abilities are not normal, so that makes sense, right? As an issue of trust... trust in the things you learn from those seizures/episodes/intuitions, attributing them to something going wrong in your brain can be tough. But experience tells the story, and I at least have learned to have faith. I would love to talk more about this or get into more detail. Perhaps we could chat on a messenger or via email or something. Sary

Re: Psychic-Type Epilepsy?

Submitted by elis on Sat, 2013-11-09 - 20:21
This is very interesting. I have had epilepsy since I was 11. Throughout my life I have had many episodes that one could attribute to psychic abilities. For example when I was younger I had a lot of experience with de je ve (sorry don't know how to spell it) and when I was a child I remember knowing that there was a ghost in our house who was watching out for me. When I was a young woman I told friends around me that a good friend of ours had lost her baby before any of us even knew she was pregnant because of a dream that I had. When we go house hunting some houses I can't go into and then we find out that there have been murders there. Well you get the drift. I have just gone onto Lamictol and for the first time in my life I think I had a hallucination. It was like a ghost - the blurry outline of man standing behind my dog- it remained visible for about 3-10 seconds until I looked away. My heart was pounding and I was very frightened. The episode has left me very frightened. I am wondering - and it makes me feel crazy - but I wonder if the drug lowers the threshold between this plane and another plane of existence and if I really did see a spirit. As a child it was easy to accept a friendly spirit. It was my friend and protector but as you get older one is taught to disbelieve these things........... elis

Re: Psychic-Type Epilepsy?

Submitted by rebmil on Sun, 2013-11-10 - 15:56

Hello. I just read this post and feel I had to comment. I started to have grand mal seizures only in my sleep starting 5 years ago in 2009. I had all the tests done, CT Scan, MRI, and EEG. All came back negative and showed no seizure activity. I was put on Dilantin 100 mg 3xaday. It was changed to 2xaday. Then it was changed to Phenytoin 2xaday. Then because of stomach upset and frequent throwing up my dr. changed it to Tegretol. The new pill was not good for me, it was making me become angry, so I switch back to Phenytoin. I took the seiz. med for a year and a half. Eventually the med started to make me lose my memory. So I decided to wean myself off the med. Now I take no seizure med for my grand mal seizures. I still have them only in my sleep and they only happen 1 maybe 2 times month.

But the reason why I wanted to comment is because after I started having grand mal seizures only in my sleep, I started to notice that I was having dreams that seemed to come true the next day. Like one time I dreamed my boyfriends uncle who lived next door to us was mowing his lawn on a chariot style riding lawn mower. The next day the uncle mowed his lawn on his riding lawn mower. Another time I had a dream that my boyfriend and I got a present from his dad and step mom and the next day they gave us the same present I dreamed about. Sometimes I also know things before they happen. I tell my boyfriend about something that is going to happen and it does. But he tells me that really does not mean anything because nobody but us knew about the thing that happened.

I know these things could be considered a coinscidence and don't really mean anything, but it just makes me wonder. I only started having dreams and feelings about things that seem to happen only after I started to have grand mal seizures in my sleep. I have never mentioned this to any dr.s because down here in Louisiana, they would think I am nuts. But nobody in my family has seizures but me. My mom had some psychic abilities. She knew things before they would happen. When my older brother got sick with Bipolar Manic Depression, she knew he was going to get sick before he even did. Nobody else in my family has any psychic abilities, just my mom and me. 

There needs to be more research done about this topic. Do psychic abilities happen in people with seizures and epilepsy and does seizures or epilepsy cause people to have psychic abilities?

Well take care everyone.

 

Hello. I just read this post and feel I had to comment. I started to have grand mal seizures only in my sleep starting 5 years ago in 2009. I had all the tests done, CT Scan, MRI, and EEG. All came back negative and showed no seizure activity. I was put on Dilantin 100 mg 3xaday. It was changed to 2xaday. Then it was changed to Phenytoin 2xaday. Then because of stomach upset and frequent throwing up my dr. changed it to Tegretol. The new pill was not good for me, it was making me become angry, so I switch back to Phenytoin. I took the seiz. med for a year and a half. Eventually the med started to make me lose my memory. So I decided to wean myself off the med. Now I take no seizure med for my grand mal seizures. I still have them only in my sleep and they only happen 1 maybe 2 times month.

But the reason why I wanted to comment is because after I started having grand mal seizures only in my sleep, I started to notice that I was having dreams that seemed to come true the next day. Like one time I dreamed my boyfriends uncle who lived next door to us was mowing his lawn on a chariot style riding lawn mower. The next day the uncle mowed his lawn on his riding lawn mower. Another time I had a dream that my boyfriend and I got a present from his dad and step mom and the next day they gave us the same present I dreamed about. Sometimes I also know things before they happen. I tell my boyfriend about something that is going to happen and it does. But he tells me that really does not mean anything because nobody but us knew about the thing that happened.

I know these things could be considered a coinscidence and don't really mean anything, but it just makes me wonder. I only started having dreams and feelings about things that seem to happen only after I started to have grand mal seizures in my sleep. I have never mentioned this to any dr.s because down here in Louisiana, they would think I am nuts. But nobody in my family has seizures but me. My mom had some psychic abilities. She knew things before they would happen. When my older brother got sick with Bipolar Manic Depression, she knew he was going to get sick before he even did. Nobody else in my family has any psychic abilities, just my mom and me. 

There needs to be more research done about this topic. Do psychic abilities happen in people with seizures and epilepsy and does seizures or epilepsy cause people to have psychic abilities?

Well take care everyone.

 

Re: Psychic-Type Epilepsy?

Submitted by radiosmom on Tue, 2013-11-12 - 19:47

Thank you all for responding. I am glad to hear that others have shared my experiences. I know the doctors can't answer our questions, because they just don't know yet. But after a lifetime of experiencing psychic ability that is very strong, I have no doubt that it is real. I can't tell you how many times I have had precognitive dreams. Some of them were so realistic, in one instance, I called my friend to tell her I was sorry that her cat had died. She asked me what I was talking about, because her cat was fine, sitting right next to her. But later she called back, hysterical, saying the same cat had been killed by a car. She wanted to know how I had known before it happened. Other times, I might have a terrible feeling for days or weeks, with no explanation. One time I mentioned to my daughter that I was having awful dreams about a huge wave, We lived in Seattle at the time, and I was afraid there would be a tsnaumi.  Two weeks later, the huge tsnaumi that stuck Indonesia and all across Asia, killing at least 250,000 people happened. Since I didn't know yet that I had seizures in my sleep, I did not make the connection that these were possibly seizures that were causing the precognitive ability.

 Now that I do know I have seizures in my sleep, I am often afraid to fall asleep. All the gran mals I have known about in the last year since I was diagnosed occured while I was napping during the day. Now I am trying to figure out if getting sleepy in the day is an aura for me. Or maybe taking the nap lowers the seizure threashold? 

I do know now that I have a cracked jaw (TMJ) from seizures in my sleep at night.  Previously, it was explained by stress.

Besides dreaming, I have all kinds of abilities psychically. I think all people do, but don't access it for some reason or another. I am glad to have Epilepsy if it gives me a special talent. I would not have it operated away unless my seizures become much worse then they are now. SO far, no medication has caused me to stop having the psychic experiences. But going off anti depressants for a week once gave me intense ability, to the point that it had to stop or I would have gone insane.

 

Please continue to respond. I welcome individual discussions if you can tellme how to contact you. (I can't dream up your email address!)

Radiosmom

Thank you all for responding. I am glad to hear that others have shared my experiences. I know the doctors can't answer our questions, because they just don't know yet. But after a lifetime of experiencing psychic ability that is very strong, I have no doubt that it is real. I can't tell you how many times I have had precognitive dreams. Some of them were so realistic, in one instance, I called my friend to tell her I was sorry that her cat had died. She asked me what I was talking about, because her cat was fine, sitting right next to her. But later she called back, hysterical, saying the same cat had been killed by a car. She wanted to know how I had known before it happened. Other times, I might have a terrible feeling for days or weeks, with no explanation. One time I mentioned to my daughter that I was having awful dreams about a huge wave, We lived in Seattle at the time, and I was afraid there would be a tsnaumi.  Two weeks later, the huge tsnaumi that stuck Indonesia and all across Asia, killing at least 250,000 people happened. Since I didn't know yet that I had seizures in my sleep, I did not make the connection that these were possibly seizures that were causing the precognitive ability.

 Now that I do know I have seizures in my sleep, I am often afraid to fall asleep. All the gran mals I have known about in the last year since I was diagnosed occured while I was napping during the day. Now I am trying to figure out if getting sleepy in the day is an aura for me. Or maybe taking the nap lowers the seizure threashold? 

I do know now that I have a cracked jaw (TMJ) from seizures in my sleep at night.  Previously, it was explained by stress.

Besides dreaming, I have all kinds of abilities psychically. I think all people do, but don't access it for some reason or another. I am glad to have Epilepsy if it gives me a special talent. I would not have it operated away unless my seizures become much worse then they are now. SO far, no medication has caused me to stop having the psychic experiences. But going off anti depressants for a week once gave me intense ability, to the point that it had to stop or I would have gone insane.

 

Please continue to respond. I welcome individual discussions if you can tellme how to contact you. (I can't dream up your email address!)

Radiosmom

Hi,

Submitted by missysimpson@att.net on Sun, 2014-03-30 - 11:07
Hi, I'm newly officially diagnosed with temporal lobe seizures, though I was diagnosed with "benign myoclonus" and "weird migraines" several years ago and was treated for seizures with low dose anti-seizure meds, but I believe I've had seizures since childhood. Since at least my teenage years I've had psychic visions, mostly in my sleep. Since starting higher dose seizure meds and currently having up to 5 seizures daily, I'm having waking visions. Some are spot on and some require a little interpretation. I've always attributed it to my indian heritage. Ya know..."the gift" lol. I recently freaked a friend out when I woke up early one morning and called her to tell her she was getting married. She told me not to even joke about such a thing. That was December 27. On Feb 26 she announced that she was engaged. All of the blood drained from her face when I reminded her that I dreamed it was coming. I'm glad to know that I'm not schizophrenic for thinking this is a real thing. Thank you guys for sharing this.

I'm 23 and last week this

Submitted by Anonymous on Thu, 2014-04-10 - 00:22
I'm 23 and last week this started with the dreams that come true. They are very specific situations: acquaintances that I barely know doing exactly in real life what they did in my dream that ended up leading to me and my boyfriend breaking up (both in my dream and in reality the next day), my friend getting in a fender bender the day after I dreamed it, my boss getting angry about a specific comment someone made (whom I've never met), and then the next day my boss told me that this person had made the same comment to her and she had the same reaction as in my dream. Then last night something strange happened. I've been told that I jerk around in my sleep and grind my teeth since I was a child. Last night was different. While dreaming, I heard this loud, unbearable ringing that would fluctuate in volume like a siren. The louder it got the heavier my body and the tighter my jaw would clench. It was uncontrollable. This kept coming in about 3-4 waves of the loud ringing and increasing my inability to move as the ringing got louder simultaneously - all while asleep. I don't know what to do. This has never happened to me before. Every single dream I have had in the past week has come true. It's not deja vu, and I've never had a dream where I've felt something so physical and heard something so loud that obviously wasn't there - my roommate didn't hear anything.

My neurologist explained to

Submitted by Laura42 on Fri, 2017-09-22 - 12:47
My neurologist explained to me that my seizures are causing brain damage and scarring, the brain has a unique ability to remap itself and so it causes me to tap into another, less used area of the brain and that is probably where my psychic abilities come from. Also, I have brain damage from a car accident. I have never seen my abilities as a gift, I usually know when someone is going to die before it happens...my son for instance. I knew for a month before I lost him that he was going to die. I kept seeing him being brought home in a body bag. I always thought, "If this is a gift from God, what kind of God would do this to me?" I don't want to be tortured with images of horrible things before they happen, but the way my doctor explained it, made it more scientific and it was easier for me to accept. I also don't see my epilepsy as a disease. I think of it more like an injury that I have to learn to work around.

I get these Dejavu feelings.

Submitted by Bekfaktor7 on Fri, 2018-03-02 - 19:17
I get these Dejavu feelings. Sometimes I can push through them but most of the time I have to be very still and can't talk. I feel a fear like no other. All I can't think is  that" I've been here before". I'm waiting for something bad to happen most of the time. And it's kinda like a movie is playing in my head but after it passes I can't remember. During these I get this tingly feeling behind my head and pretty much all over my body. I also have constant headaches. Is this anything like a seizure? I was told that I was just having flashbacks but they are almost happening on a daily basis. Sometimes up to 3 to 4 times a day. 

i get this exact same thing.

Submitted by sharonka78 on Fri, 2018-10-19 - 21:39
i get this exact same thing. deja vu and kinda like a movie playing in my mind. either i lose consciousness or not but feel nauseous after for hours

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