Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

My experience with Focal On-set Impaired Awareness Seizures (Complex Partial Seizures)

Mon, 02/17/2020 - 14:49
I have Focal On-set Impaired Awareness Seizures (Complex Partial Seizures), and I can also have Tonic-Clonic Seizures (Gran-mal Seizures). Here are few incidents that have happened to me over the past 8 years of being epileptic. - My father tried to bring me to emergency at a near by hospital after I had several seizures back to back, but we were told I am drunk and I have to leave before the police are called. On our way out I had a another seizure (Surprised?) and a security guard got hit when I was flailing around from the seizure. I then woke up in a holding cell with broken ribs and bruises on my head from when they slammed me to the ground, and I was charged with assault to top it off.. All while I was with held my anti-consultants until bail was paid... Did not receive any sort of medical treatment.. No ICU... So to sum it up for you, I went to a hospital for help, because I could have died. The treatment I got was having my head slammed off the ground and my ribs broken and then punished further by being sent to a holding cell and treated like a criminal, and then also put my life in even more danger by not providing me with any medication. Which I need to live.... At least that is what my Neurologist's tell me, but I guess the police are above that and can put anyone's life in danger when they clearly need medical help... - On another occasion my parents tried to call 911 for a ambulance, because I was having a seizure running around the back yard in -30 weather in only my underwear and they couldn't get me to come inside. Instead three cruiser's with 6 police officers showed up, and put me in handcuff's, and put me face down in the back of one the cruiser's. Almost a hour later EMS finally shows up after my parents kept telling these ignorant police officers that I am not drunk, and I am having seizures, and I need medical help. Sure enough my shoulder popped out of its socket and both my arms had bruising and cuts from my wrists to almost my elbows from the handcuff's... Apparently the police are not educated enough to know you are not supposed to restrain someone that is having a seizure, but even children in elementary school know this?? I have had several other experiences similar to these, there is just not enough time or room to write them all down.. You would think after several incidents like these they would update my profile for when 911 is called for me, so uneducated police officers don't get confused and try to kill me all the time. My life obviously is not important enough for them to do that though. So I have to experience the same thing every time I need medical help. Which has led me to no longer seek help when I am having seizures. I can not afford to be charged when I barely live off disability support... Police officers even have the technology to tell if someone is intoxicated (breathalyzers) only they choose not to use that technology for people with disability's and instead make the assumption that they are intoxicated when they actually need medical help? So Police officers are smarter then the technology? Why was it even invented if they already know? Its even more crazy that people so uneducated that they don't know what a seizure is are aloud to enforce the law while unsupervised.. Scary world I live in... This is only the first 8 years of being epileptic, and I am only 30.. So whats next?? What happens when my parents are not there to explain anything, do I get held at gun point? TLDR: What I have learned through my experience with Complex Partial Seizures is it's not safe to go to the hospital, or call 911 for help when I am having a seizure, because the police will always show up first to hurt me, and arrest me, and put my life in even more danger.. All because there are uneducated idiots running around enforcing the law unsupervised.

Comments

Omg!!? That's horrible! 0

Submitted by Ge0192 on Tue, 2020-06-09 - 05:35
Omg!!? That's horrible! 0 education..u should do a massive complain! I ve also got impaired awarness seizures but not grand mal.. i hope i will not get the other one...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.