Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Military/Depression/Alcoholism

11/2018 | 1 Comments

Had my first seizure during an extreme physical challenge equivalent to several triathlons. I was throwing up and ultimately seized then went into a...
Looking for Advice\ Suggestion

11/2018 | 2 Comments

My son is 6 years old. He had his first seizure when he was 2 days old. He was admitted to the hospital for 2 weeks. He was then put on seizure...
ufa

11/2018 | 0 Comments

ขอบคุณมากครับสำหรับความรู้ เป็นประโยชน์ มากๆ เลย สมัครเอเย่นต์tndbet https://ufabet-group.com/ :AO
My ride with epilepsy and RNS so far

11/2018 | 0 Comments

I was a supervisor in the oilfield when I was diagnosed with epilepsy. I had to leave job lucky I had insurance. After roughly 10 types of meds...
Anxious

11/2018 | 3 Comments

Hi, my name is Tori. I was diagnosed with primary generalized epilepsy when I was eight; I am now 22. I have two beautiful children now. I had...
Jeavons Syndrome

11/2018 | 2 Comments

Hello! I have a beautiful 12 year old daughter with Jeavons Syndrome. I would like to tell her brief story and see if anyone has any tips, tricks...
Under control

11/2018 | 0 Comments

I had my first seizure in 2010 while away at college. I felt so helpless, as none of my family were nearby (my parents were almost 4 hours away). This...
My son

10/2018 | 0 Comments

Hello my name is Angela and my son who is 5 now has been having seizures since he was 3 months old we have been through 3 nuerologist all together...
Medical marijuana/CBD oil

10/2018 | 6 Comments

I’ve had seizures for over 25 years as a result of encephalitis. I’ve taken about every anti-convulsive med on the market and combinations thereof. I...
My story

10/2018 | 4 Comments

I feel massively depressed today, so I thought maybe just trying to type out something I don’t understand, to people who may, might help. My first...
Desperate for Help - AVDF

10/2018 | 0 Comments

My mother who is 85 had the flu beginning of February and was sedated and intubated for 8 days and nearly died. She survived and then had a seizure in...
coping with my epilepsy

10/2018 | 0 Comments

Hi my name is Mike and i have had Epilepsy for many years and sadly in my case its getting worse .Right now i am on my 8th change of medication and in...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.