Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
2 rounds of seizure medicine fail and then surgery?
Fri, 10/31/2008 - 12:29Topic: Surgery and Devices
Is it normal to have surgery for epilepsy after two types of seizure medicine fail? What has been other people's experiences been? I have had both Zonegran and Depakote fail alone and need additional medications. Now my neurologist is recommending surgery.
2 rounds of seizure medicine fail and then surgery?
Submitted by ammer101 on Wed, 2008-11-05 - 21:36
Hi Greg,
My name is Christine & I've had epilepsy for 37 years. Just when you think you have problems, you come across someone who has had it worse then you. I read your story and even though I went through a period of 2 years changing medication & then having brain surgery, it doesn't even compare to what you have gone through! I can't even imagine what it's been like for you. The year you had the Vagus Nerve Stimulator implanted was the same year I had surgery, they removed the left temporal lobe of my brain which is where the seizures were coming from. What other side effects do you deal with due to the Stimulator? My biggest frustration is the loss of memory! It makes me feel stupid and no one seems to understand this. I try to get through it by telling friends & family that I don't have Alzheimers, I have "Sometimers"; meaning that "sometimes I remember & sometimes I don't". Comedy & laughter have been the best medication for me & I thank all of my friends for that. Take care of yourself & keep in touch.
Chris
Hi Greg,
My name is Christine & I've had epilepsy for 37 years. Just when you think you have problems, you come across someone who has had it worse then you. I read your story and even though I went through a period of 2 years changing medication & then having brain surgery, it doesn't even compare to what you have gone through! I can't even imagine what it's been like for you. The year you had the Vagus Nerve Stimulator implanted was the same year I had surgery, they removed the left temporal lobe of my brain which is where the seizures were coming from. What other side effects do you deal with due to the Stimulator? My biggest frustration is the loss of memory! It makes me feel stupid and no one seems to understand this. I try to get through it by telling friends & family that I don't have Alzheimers, I have "Sometimers"; meaning that "sometimes I remember & sometimes I don't". Comedy & laughter have been the best medication for me & I thank all of my friends for that. Take care of yourself & keep in touch.
Chris