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anyone had left frontal lobe resection?

Wed, 02/28/2007 - 11:07
despite my username i am gregg not greggs wife.on march 12th i will go to mayo clinic to have intercranial monitoring with grids done.if this pinpoints enough i will have a resection a couple days later.im pretty nervous now.my big fear is that they can't resect.i'm not so worried about the intercranial monitoring.i've had it done before(only with strips) so i know what to expect.i have faith in the surgeons .i'm not worried about dying.i'm worried about after the resection.what will it be like.i want to know the truth.don't candy coat it.it would mean alot to me to hear a response. gregg (epileptic for 28 yrs.)

Comments

Re: anyone had left frontal lobe resection?

Submitted by mamasaw on Tue, 2008-09-02 - 20:45
My daughter just had left temp. resection on March 5th of this year. She did GREAT. Feeling so much better. She was home in 2 days after surgery. The pain was bad at first, but stay with your pain meds. Take them as prescribed and stay ahead of the pain. She was on Tylenol for pain in about a week. She was off work about 8 weeks, but was up and around in about 2-3 weeks. It's the best decision she's ever made. They did not have to shave her whole head. You cannot even see the scar now. No headaches. She doesn't seem to have lost much peripheral vision. She's just started driving again after many years. Her quality of life is SO much better now. She sleeps better and has a whole new outlook on life. It was scary, but the dr. really spent time telling us what to expect. It was worth it. Good LUCK

Re: anyone had left frontal lobe resection?

Submitted by Emz21 on Thu, 2008-10-23 - 14:45

Hi,

I had  left temporal lobe resection on 26th July this year. It went better than we would every have imagined! I was in and out of the hospital in 4 days I felt so well. You can now hardly see the scar at all (my hair has all grown back and covered it up) and it doesnt hurt at all. When I woke up after the 5 hour operation, I felt grotty, of course I did, but by the next day I was absolutely fine, and by the day after they could take my bandage off. When I got home I had no side effects at all, I was on paracetomol 4 times a day for about a month, and loved my afternoon naps! When I was tired I fell asleep. The only side effect has been that aparently its made me extra hyper - but i can live with that! now, nearly 3 months on im 100% better, and haven't had a single seizure. I used to have focal particals 2 -3 times a week, and as yet I haven't had a single one from the moment I woke up!

Anymore questions, feel free to contact me - flippinmental90@hotmail.com

take care

Emma

Hi,

I had  left temporal lobe resection on 26th July this year. It went better than we would every have imagined! I was in and out of the hospital in 4 days I felt so well. You can now hardly see the scar at all (my hair has all grown back and covered it up) and it doesnt hurt at all. When I woke up after the 5 hour operation, I felt grotty, of course I did, but by the next day I was absolutely fine, and by the day after they could take my bandage off. When I got home I had no side effects at all, I was on paracetomol 4 times a day for about a month, and loved my afternoon naps! When I was tired I fell asleep. The only side effect has been that aparently its made me extra hyper - but i can live with that! now, nearly 3 months on im 100% better, and haven't had a single seizure. I used to have focal particals 2 -3 times a week, and as yet I haven't had a single one from the moment I woke up!

Anymore questions, feel free to contact me - flippinmental90@hotmail.com

take care

Emma

Re: anyone had left frontal lobe resection?

Submitted by rebekah1 on Mon, 2013-09-02 - 21:02

To Gregg9130: 

Hi, I am currently in the same position you were in when you made this first post.  My first consult with the neurosurgeon is next month.  It would be grid & strips, take me off my meds, make me have seizures, try to pinpoint a focal point, and then do a resection all in one hospital stay. 

I'm getting nervous about it to some extent now that it is finally in process.  I've been through all the video EEG, PET, MRI, Neuropsychological test and have been approved for the surgery.  My doctors are at Duke University Medical Center.  I have had epilepsy for 10 years.

I didn't know if you had any advice if you had the surgery. 

Thanks

To Gregg9130: 

Hi, I am currently in the same position you were in when you made this first post.  My first consult with the neurosurgeon is next month.  It would be grid & strips, take me off my meds, make me have seizures, try to pinpoint a focal point, and then do a resection all in one hospital stay. 

I'm getting nervous about it to some extent now that it is finally in process.  I've been through all the video EEG, PET, MRI, Neuropsychological test and have been approved for the surgery.  My doctors are at Duke University Medical Center.  I have had epilepsy for 10 years.

I didn't know if you had any advice if you had the surgery. 

Thanks

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