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Has anyone had the strip Intracranial EEG?

Sat, 11/25/2006 - 14:43
Hi, My epileptologist wants me to have an intracranial eeg (the one with the strips). I've been thinking about having surgery, but I'm not sure now considering I'd have to go through this test. The thought of holes drilled all over my head isn't very appealing. I was told three years ago that I have a tumor in my right temporal lobe. I've had numerous surface eegs, and the only one that shows any activity at all shows more seizure activity on the left side of my brain. For some reason, my brain knows when I'm hooked up and decides to act normal. ha I had a VEEG in '03. They took me off my meds and gave me Benadryl to induce seizures that time, and it finally worked. My actions during those seizures appeared to be left sided. The eegs, though, show sparks on the right during the beginning where the lesion is but then a lot of activity on the midline and left side of my brain. The little sparks don't give my epileptologist enough comfort to order a surgery with a seizure protocol, even though she feels they are just quickly jumping across once they start. The seizures are starting so deep inside my brain that they haven't been able to get the hard data she wants, so she wants this intracranial thing to give it to her. Here's the deal. I don't want to have surgery if it's going to be a straight tumor surgery. The tumor is dead. It doesn't scare/bother/concern me at all. I never think about it. The seizures bother me. The ones I have happen maybe 1-2 days out of the month and are like partial partials, if that makes any sense. I just feel weird and will panic and gag for about 15sec - 1 minute. On the worst days, it'll happen off and on all day. Anyway, if it'll be a tumor resection with a seizure protocol surgery, I'll consider it again, depending on what this test is like. They can't tell me without this test, though. They have to know where they start in order to tell me if they can take out all of the area surrounding the dead tissue. Can anyone tell me what it's like? The more detailed info the better. The docs can only tell me so much, but they've never experienced it. I need to talk to someone who has. Thanks, CarrieB

Comments

Re: Re: Re: Has anyone had the strip Intracranial EEG?

Submitted by mommy2kyra on Sat, 2006-11-25 - 22:27
Hello Carrie, The intracranial monitoring requires brain surgery. The only difference is that they aren't removing any of the brain matter. It is a very major surgery. The reason my monitoring didn't last very long is because my seizures kicked in so quickly. Everyone expected it to take at least a couple of days for my seizures to begin. I had agreed to take part in a study, but I wasn't even hooked up to their special machinery before the seizures began! So, they were all pretty surprised. I've read that anesthesia has anti-seizure effects, but it didn't work that way for me, LOL! My husband was allowed to be there at all hours, but he tried to be at home with our girls as much as possible. Our girls were 3 1/2 and 1 1/2, and very attached to me, he didn't want to make it even harder for them. As a result, I was alone much of the time (which certainly didn't help me emotionally) but I didn't want our girls to suffer even more. My hubby was there during my surgeries, but in the waiting room. Heather

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