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looking for opinions on surgery

Wed, 04/27/2005 - 00:08
my seizures are left temporals, my MRI s show nothing abnormal.  I have smaller seizures once a week, and a few gran mals a year.  my meds are having control of my life.  my memory is slowly deteriating.  my daughter will bring up something from the past that most mothers would remember, and I cannot.  i always have to sleep for an hour or two after a seizure, as well as sit down to take a rest once my medicine kicks in.  1050mg trileptal, 1000mg keppra  both twice a day.  the seizures and the meds are eating my memory,  through out time wouldn't it be far worse than surgery?  what should i do?  Is my epilepsy bad enough to consider surgery?  opinions anyone?

Comments

RE: looking for opinions on surgery

Submitted by mak1123 on Tue, 2005-04-26 - 13:41

i have had epilepsy my whole life, i think that i have been on every med that there is.  i have had WADA tests, EEGs, in depth EEGs, MRIs, i can go on and on.  so i have the holes in my head, i've had the wires in my brain, through my heart to my brain.  I've been in the hospital countless times.  My daughter found me once on the floor in a three foot puddle of blood because i had one and fell and broke my nose.  i have so many stories, i've had every type of seizure i know of, that is alot of different seizures.  just today while trying to help my parents with their new home, i had to take a break because my meds kicked in, i couldn't see more than five feet in front of me.  I now have the best doctor in the pittsburgh area, we have been going back and forth about the idea of a surgery.  I've just been curious as to what other epileptics out there think of my situation.

thanks

i have had epilepsy my whole life, i think that i have been on every med that there is.  i have had WADA tests, EEGs, in depth EEGs, MRIs, i can go on and on.  so i have the holes in my head, i've had the wires in my brain, through my heart to my brain.  I've been in the hospital countless times.  My daughter found me once on the floor in a three foot puddle of blood because i had one and fell and broke my nose.  i have so many stories, i've had every type of seizure i know of, that is alot of different seizures.  just today while trying to help my parents with their new home, i had to take a break because my meds kicked in, i couldn't see more than five feet in front of me.  I now have the best doctor in the pittsburgh area, we have been going back and forth about the idea of a surgery.  I've just been curious as to what other epileptics out there think of my situation.

thanks

RE: looking for opinions on surgery

Submitted by smokingtp on Wed, 2005-04-27 - 00:08

Please stay away from brain surgery for epilepsy. When the doctor suggests "scar tissue removal" he really means "healthy good brain tissue removal"When healthy godd brain tissue is removed from a human subject, this causes further scar tissue, which results in greater epileptic convulsive disorder, cerebral hemmorrahaging, and status epilepticus. Every year in Canada, 2400-4600 people die as a result of status epilepticus. The number one adverse effect of temporal lobectomy. If brain surgery is so helpful for epilepsy, then there should be no fatality rate.

If you are really concerned with seizure control, get some marijuana.  CBD in pot  acts as anticonvulsant, while THC takes care of cancer cells, poor appitite, and negative psychopharmcological effects such as depression, and suicidal tendacies.

Stay away from THC delta 9, synthetic form, since THC is well known for paradoxal effects for treating epilepsy.CBD is so effective, that it over rides any paradoxal effect of THC.

Every good doctor knows that all remedies must be exersized before surgery.

No reason to exclude marijuana.

A joint in front of me, is better than a unauthorized lobotomy.

 Yours,

           Terry Parker Jr.

            Psychosurgical rape victim

            www.geocities.com/terryparkerjr/

             www.cyberclass.net/turmel/timeline.htm

             terryparkerjr@sympatico.ca

 

Please stay away from brain surgery for epilepsy. When the doctor suggests "scar tissue removal" he really means "healthy good brain tissue removal"When healthy godd brain tissue is removed from a human subject, this causes further scar tissue, which results in greater epileptic convulsive disorder, cerebral hemmorrahaging, and status epilepticus. Every year in Canada, 2400-4600 people die as a result of status epilepticus. The number one adverse effect of temporal lobectomy. If brain surgery is so helpful for epilepsy, then there should be no fatality rate.

If you are really concerned with seizure control, get some marijuana.  CBD in pot  acts as anticonvulsant, while THC takes care of cancer cells, poor appitite, and negative psychopharmcological effects such as depression, and suicidal tendacies.

Stay away from THC delta 9, synthetic form, since THC is well known for paradoxal effects for treating epilepsy.CBD is so effective, that it over rides any paradoxal effect of THC.

Every good doctor knows that all remedies must be exersized before surgery.

No reason to exclude marijuana.

A joint in front of me, is better than a unauthorized lobotomy.

 Yours,

           Terry Parker Jr.

            Psychosurgical rape victim

            www.geocities.com/terryparkerjr/

             www.cyberclass.net/turmel/timeline.htm

             terryparkerjr@sympatico.ca

 

Re: looking for opinions on surgery

Submitted by smokingtp on Mon, 2006-07-24 - 18:47
There should be a law against brain surgery for epilepsy, when there is so much misrepresentation by our neurosurgical profession. Brain surgery for epilepsy, is nothing more than psychosurgical experimentation without informed consent. Psychosurgery means "Surgery to alter behavior"and NOT recognized for treating epilepsy. Yet we have a medical profession which lies to the patient and/or parent, and then carries out psychosurgical temporal lobectomy, while under the guise of "scar tissue removal" For years I have been trying to expose this misrepresentation by our medical profession, only to be confronted by this process of denial by our police, government, and epilepsy associations. To view evidence, check out http://www.geocities.com/terryparkerjr/ Would appreciate to hear from those, who have had any experience with Dr. Harold J. Hoffman of the Toronto Hospital for Sick Children. (1968-1998)

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