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partial complex seizures
Sun, 07/25/2004 - 16:24Topic: Surgery and Devices
Hi everyone, I'm new at all of this. I've never written in to chat rooms before but I could really use some information and advise, so I thought this probably would be a good place to start. My 25 year old son has been having Complex partial Seizures for about 5 years. He has Sclerosis of the frontal lobe. Until now his seizure have always been a lapse in time where he doesn't remember what happened in that time period. He has a strange look in his eyes but otherwise appears normal. 2 weeks ago he started what we thought looked almost like a muscle spasms in his left arm. By morning they were down his whole arm and leg. Now we know they were seizures and the doctors say he has epilepsy. He spent 12 days at Yale New Haven Hospital where his doctor was doing tests. The doctor says this is a new way the seizures are manifesting themselves. He is on 200 mg TOPAMAX 2x daily 1200 mg NEURONTIN 3x daily, 300 mg TRILEPTAL 3x daily. The TRILEPTAL is the new one they just put him on. I don't know anyone who has taken thid drug or if there are side effects. He was on Keppra before this happened. The Keppra didn't seem to help at all. He was just very cranky on it. He seems back to normal now. I found some wonderful websites with information about this and that has helped but there is nothing better than people. Has anyone had similar problems and can offer some advise. Sorry I rambled! ThanksPenny H.
Re: Hi Penny, As one who has had
Submitted by amsound on Sat, 2007-07-07 - 16:12
Hi, I've never used one of these chatt rooms before so be patient if I go wrong. I'm suffering from complex partial seizures and they've put me on all different kinds of medication to no avail. If I don't take medication, I gett more severe seizures but fewer of them. I'm now taking Lyrica and find that the seizures are less severe but seem to take longer to subside. I have been advised to go for an operation and was just wondering if anyone can tell me if such operations are successful. It is so good to have a website with other people out there who understand what I'm going through. dr