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Should I have surgery???

Tue, 10/09/2018 - 23:38
Hi everyone. I have tonic colonic grand mail seizures. I have them, usually, only every few months. Sometimes more frequently, but sometimes less too... I have a cavernous angioma in the right frontal lobe. I’m taking oxtellar ox (oxcarbazapine) 900 mgs. And onfi (oxcarbazam) 5 mgs. I feel tired and crazy (tired but wired), very anxious, constantly afraid of having a seizure... I haven’t driven for 10 years. I am 39. My family and loved ones wish for me to “just have the surgery”, wishing and hoping that this would cure it all. My neuro has said that it looks able to be removed. First, I’d have to have tests like the WADA test and other invasive painful proceeders. Doc has said that I have a great chance of the surgery curing my seizures, but, no garentees; I might still have some, and I’d likely have to remain in these horrible medications. My question is this: should I continue to try to reduce the frequency and severity of my seizures by life style improvements and trying to find a better med... or should I “just have the surgery”? And hope for the best. My thought is that if there is ANY way to not have brain surgery, I should do that. Given the infrequency of mine, idk if such a major procedure is reasonable. Any thoughts are appreciated!!! Especially if you are on a good med that I ought to perhaps try first, and/or if you have gone through surgery. Thank you. Good luck to you all.

Comments

I have epilepsy ever since I

Submitted by rginairvin62@gmail.com on Fri, 2018-12-21 - 05:52
I have epilepsy ever since I was 4 years old I am now turning 56 in eight days.When I had my daughter I didn't know any information at the time.When I was pregnant my seizures had gotten out of control there was more to help  stop the seizures so I decided to have brain surgery.  I had to have two of them.  The first surgery was to find out where the seizures were coming from the second surgery was to remove my  right temple lobe and my hippocampus.

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