Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Strips and Grids???

Thu, 12/20/2007 - 16:47

Hello everyone I was wondering has anyone had the strips and grids test done.  I am having surgery within the next year and have been told that my next step after therapy is the "strips and grids"  Now from what I understand this is the test where they drill the holes in your head and put the eeg right on your brain.  But I would like to learn more about it I feel better going through a test when I know more about it.  Has anyone done it or have a link or further infomration about it??  Or could you even just tell me how it works???  I will admit this one kinda scares me..invasive eeesh!

 

Thanks

 

Sassy 

Comments

Re: I don't want to scare you

Submitted by queeniw on Sat, 2008-02-02 - 18:24

I had this procedure done a little les than 2 years ago.  Peoplr have explained it quite well so I won't bother going through everything.  The one thing that I would advise anyone is that you ask as many questions as possible.  Don't let your surgeon sugar coat any part of the procedure.  I actually trusted my doctors and now wish that I had found out more about the procedure.  I ended up having 2 bleeds which caused 2 strokes.  My neuro surgeon even told me that there is the possibility of a stroke as in any operation but that that most likely would not  happen to me.  I wouldn't have the surgery because it is in a very dangerous part of my brain and I don't ever want to go through what I have gone through.  I'm a small perscentage of people that this happens to but it is possible.  I just feel that it is very important to ask your doctor anything and everything that you can think of. Best of luck if you end up going through the surgery.  Mar

   (if you have any other questions or would like more detail, just say so)

I had this procedure done a little les than 2 years ago.  Peoplr have explained it quite well so I won't bother going through everything.  The one thing that I would advise anyone is that you ask as many questions as possible.  Don't let your surgeon sugar coat any part of the procedure.  I actually trusted my doctors and now wish that I had found out more about the procedure.  I ended up having 2 bleeds which caused 2 strokes.  My neuro surgeon even told me that there is the possibility of a stroke as in any operation but that that most likely would not  happen to me.  I wouldn't have the surgery because it is in a very dangerous part of my brain and I don't ever want to go through what I have gone through.  I'm a small perscentage of people that this happens to but it is possible.  I just feel that it is very important to ask your doctor anything and everything that you can think of. Best of luck if you end up going through the surgery.  Mar

   (if you have any other questions or would like more detail, just say so)

Re: I don't want to scare you

Submitted by SassyMindy on Mon, 2008-02-04 - 08:54

HOly freaky hore stories....it's okay though everyone needs to hear the bad side too.  Eeeesh.  This "real" feeling is hard to take sometimes. Thank you very much for all the advice. 

 

Sassy 

HOly freaky hore stories....it's okay though everyone needs to hear the bad side too.  Eeeesh.  This "real" feeling is hard to take sometimes. Thank you very much for all the advice. 

 

Sassy 

Re: Strips and Grids???

Submitted by Canadian Girl on Tue, 2008-02-05 - 17:19

My 8 year old daughter just came home from having intercrainial monitoring on January 22 and removal of her left occipital and temporal lobes on January 29.  First of all she's doing fantastic!  She had 106 electrodes on her brain, mostly grids and some depth electrodes.  Her seizures started 2 1/2 years ago and were in the occipital lobe, mostly visual but traveled rapidly to the temporal lobe.  There was also some resection of the parietal lobe.  She was not really comfortable with the grid in place.  The swelling started the day after surgery and reached its peak 2 days after surgery.  It was very uncomfortable.  She was taking tylenol and codine for pain until we realized that the codine was making her sick.  After that the tylenol every 4 hours was enough.  On the third day after surgery the Dr.'s did mapping.  It was quite an ordeal for an 8 year old to go through.  There was a concern about her language so they spent most of the time mapping to ensure that there wouldn't be a language deficit.  She was able to answer the questions while simulating those electrodes, so we were good to go.  They unhooked the wires after mapping and over the next 3 days she was tired and grumpy, but very happy to have all of that stuff disconnected.  The resection was done on Jan 29, taking 8 hours.  She spent 21 hours in ICU and and was released 4 days after that. She's still recovering, all of her language skills are intact.  She has a visual field deficit to the right in both eyes, but this is what we expected.  So far, she is seizure free.

Best of Luck

Canadian Girl

My 8 year old daughter just came home from having intercrainial monitoring on January 22 and removal of her left occipital and temporal lobes on January 29.  First of all she's doing fantastic!  She had 106 electrodes on her brain, mostly grids and some depth electrodes.  Her seizures started 2 1/2 years ago and were in the occipital lobe, mostly visual but traveled rapidly to the temporal lobe.  There was also some resection of the parietal lobe.  She was not really comfortable with the grid in place.  The swelling started the day after surgery and reached its peak 2 days after surgery.  It was very uncomfortable.  She was taking tylenol and codine for pain until we realized that the codine was making her sick.  After that the tylenol every 4 hours was enough.  On the third day after surgery the Dr.'s did mapping.  It was quite an ordeal for an 8 year old to go through.  There was a concern about her language so they spent most of the time mapping to ensure that there wouldn't be a language deficit.  She was able to answer the questions while simulating those electrodes, so we were good to go.  They unhooked the wires after mapping and over the next 3 days she was tired and grumpy, but very happy to have all of that stuff disconnected.  The resection was done on Jan 29, taking 8 hours.  She spent 21 hours in ICU and and was released 4 days after that. She's still recovering, all of her language skills are intact.  She has a visual field deficit to the right in both eyes, but this is what we expected.  So far, she is seizure free.

Best of Luck

Canadian Girl

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.