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Surgery -- experiences?
Sun, 07/07/2019 - 01:15Topic: Surgery and Devices
Hi everyone,
I am going to be evaluated for resection/laser ablation or RNS implantation. The first step will be the intracranial EEG. From the MEG test that was done, there seems to be activity coming from the temporal lobe, and from the EEG, there was activity in the parietal lobe.
I was wondering if you could share your experiences with any of these procedures, and any short or long term effects you experienced as a result, both positive and negative?
Thanks so much!
Comments
Hi Sherrod,I had mine done at
Submitted by sooihm on Mon, 2019-07-15 - 00:46
Hi Sherrod,I had mine done at Univ. of California-San Diego. It wasn't too bad of a test, not like the MRI, where you are stuck inside and can feel claustrophobic. Being a combo EEG and MRI, you have electrodes pasted on your head. You only go halfway inside the machine, mainly your head. And technology has improved a lot, so the EEG electrodes are not nearly as messy as they used to be in the olden days.Cheers,Soo
Hi Justin,Thank you for
Submitted by sooihm on Mon, 2019-07-15 - 00:54
Hi Justin,Thank you for sharing your experience.Which kind of resection did you have? What area?Thanks so much!
Well apparently my case was
Submitted by Gatesy on Sun, 2019-07-14 - 10:16
Well apparently my case was unique in itself.Worst is it was drug resistant. Started 13 years ago, Dr got in under control after a few months. Then all of a sudden it started acting up about 3 years ago so she tweaked the dosage because the body can get used to the meds. Slipped again so she added another med. Kept getting better and then worse. Eventually it got bad so I told the neurologist I would like to see someone that focuses on epilepsy so she gave me a referral to Barnes.After video monitoring EEG, Hogan talked about charts and said I have a drug resistant variation so my options were lifetime med rotation or surgery. I started seeing different departments for pre-surgery evaluation.During that the occupational therapist said what she couldn't understand was my one of my symptoms-numb right hand, moved up towards shoulder, after that I start to have a jamais vu feeling, occasional nausea. If it goes beyond that I don't remember anything-had some friends tell me I talk but what I say doesn't always make sense,- smacking lips, sweating, high BP (when the boss called a code at work the nurse said it was 200/122, a few minutes after is dropped to 150/86-still a bit high for me.) I've been told I get temperamental (I remember wanting to scream at the nurse and ask her if she knows how to check BP because there's no way its that high but I was with it enough to reign it in)What had the therapist stumped is she said I shouldn't be able to talk during temporal seizures What she thinks happened was I probably did something to hurt that area when I was younger so my body shuffled it around and moved the speech area somewhere else.